Darren Brown OBE (@darrenabrown) / X

Darren Brown OBE

15.8K posts

Darren Brown OBE

@darrenabrown

London, UK

linktr.ee/darrenabrown

Joined May 2010

Pinned
Darren Brown OBE
@darrenabrown
May 4
🔔 New in @PLOSONE today journals.plos.org/plosone/articl… Our world-first research shows the Episodic #Disability Questionnaire (EDQ) is a valid and reliable patient-reported outcome measure (PROM) among women living with #HIV, and disability is widely experienced 🧵
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Darren Brown OBE
@darrenabrown
Feb 15, 2022
Invited to present at a medical conference about Long COVID. I’m told the conference is only permitting in person presentations. I’ve declined the offer, told them in-person only perpetuates ableism, and it’s not acceptable in this day & age. End.
Darren Brown OBE
@darrenabrown
Apr 14, 2022
Today, 10 days after 1st testing positive for #COVID19 round 2, my lateral flow is finally negative. So what did I learn about this reinfection as a person with #LongCOVID 🧵
Darren Brown OBE
@darrenabrown
Sep 15, 2022
Really proud to have been a member of the @WHO Guideline Development Group for #LongCOVID Post-COVID Condition #Rehabilitation released today app.magicapp.org/#/guideline/64…
Darren Brown OBE
@darrenabrown
Dec 28, 2021
Death and hospitalisation are not the only outcomes. The false dichotomy of “death Vs quick recovery”, has been a cause of delegitimising COVID causing prolonged illness. Disability and #LongCOVID remain largely ignored in the pandemic narrative, and even more so around #Omicron.
Darren Brown OBE
@darrenabrown
Feb 15, 2022
Replying to @darrenabrown
And *WHY ON EARTH* would I want to go to an in person conference full of people. Jog on. I’m not getting COVID again.
Darren Brown OBE
@darrenabrown
May 21, 2021
I feel like I repeat myself sometimes. So I’ll try do it in one tweet for fun. #LongCOVID is not burnout. Exercise is a type of physical activity. All forms of physical activity are exertion. If exertion makes symptoms worse, you can’t exercise or think your way out of it.
Darren Brown OBE
@darrenabrown
Feb 15, 2022
Replying to @darrenabrown
Appologies if my tweet was not clear. This is a UK medical conference aimed at GPs and other health professionals. I was invited to present on the topic of Long COVID. I have the physical ability to attend in person. I’ve chosen not to accept the invitation and made it clear why.
Darren Brown OBE
@darrenabrown
Dec 6, 2021
Even to this day it still feels like a kick in the gut when you share your lived experience of a #LongCOVID health challenge with a team you’ve been referred to for specialist input, for the Dr to roll their eyes and say “yeah but I’ve never seen that … seems unlikely” 🤬
Darren Brown OBE
@darrenabrown
Apr 5, 2022
So … got COVID again! 🥺 Cough started yesterday evening. Lateral flow positive this morning. Will try get onto an antiviral study ASAP. Reinfection after #LongCOVID. Let’s see what flavour this one has to offer.
Darren Brown OBE
@darrenabrown
Jun 22, 2022
I find how people react differently to fatigue fascinating. My sister is pregnant & has fatigue. People are saying rest, don’t over exert, look after yourself. When I had severe #LongCOVID fatigue I had advice to try yoga, do a bit more each day, keep pushing/trying. What gives?
Darren Brown OBE
@darrenabrown
Jan 9, 2023
This might be the most important lesson I’ve ever read and how it relates to #LongCOVID Every #rehabilitation #rehab professional needs to read this. #GlobalPT we need to learn from history @history_physio, learn from mistakes, and avoid harm!
Is ‘Long Covid’ similar to ‘Long SARS’?
From academic.oup.com
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Darren Brown OBE
@darrenabrown
Jan 22, 2022
Today was a big day. We went cycling. Last time was Sept 2020 the day before my huge Long COVID crash. I’m now largely symptom free, stable, & no more PESE. I’ve noticed ⬆️ ability to exert myself more. Today felt like the time, & my ability, was right. And it felt fab to do it.
Darren Brown OBE
@darrenabrown
Oct 9, 2020
I am living with #LongCOVID. I am experiencing multi-dimensional and episodic disability, across all dimensions of disability. My primary symptom is fatigue & post-exertion malaise. Along with other symptoms. I want to describe the nature & extent of disability I experience.