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I AM ALS
@iamalsorg
I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS.
iamals.org
Joined November 2018
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  • Pinned
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    I AM ALS
    @iamalsorg
    Sep 15, 2025
    We're launching our Push for Progress campaign to accelerate ALS research, expand treatment access, & secure $1BN in federal funding over 3 years. ALS is at a tipping point CLOSE to new treatments, but thousands will lose access unless we TAKE ACTION @ iamals.org/progress
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    I AM ALS
    @iamalsorg
    Dec 17, 2021
    BREAKING NEWS: ACT FOR ALS JUST PASSED IN THE SENATE
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    I AM ALS
    @iamalsorg
    Sep 29, 2022
    Breaking news: The FDA has approved AMX0035! @US_FDA thank you for living up to your promise of regulatory flexibility for ALS. Stay tuned for updates on access to this treatment!
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    I AM ALS
    @iamalsorg
    Aug 29, 2022
    Our hearts are broken. Sandy Morris has passed. Sandy was not just part of I AM ALS – she was foundational to it. She either directly or indirectly impacted almost everything I AM ALS has done. We have no words to describe our grief and rage.
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    I AM ALS
    @iamalsorg
    Mar 19, 2024
    I AM ALS is humbled to have been selected as an awardee of Mackenzie Scott’s #YieldGivingOpenCall. We were gifted an incredible $2 million – the largest single gift in I AM ALS’ history! Read the full press release: iamals.org/updates/i-am-a… (1/3)
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    I AM ALS
    @iamalsorg
    Aug 20, 2024
    Couldn't have said it better ourselves. 🧡 In case you missed it: @bsw5020 and @sabrevaya brought down the house at the #DNC last night!
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    Barack Obama
    The Office of Barack and Michelle Obama
    @BarackObama
    Aug 20, 2024
    Brian and Sandra are the epitome of hope. When Brian was diagnosed with ALS, he turned tragedy into action by launching @iamalsorg and leading a movement to find a cure. I’m inspired by these two—and after you hear their story at the @DemConvention, you will be, too.
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    I AM ALS
    @iamalsorg
    Jan 21, 2021
    Listen carefully 👇👇 Yes, you heard that right. $50 billion for research to cure Alzheimer’s, cancer, diabetes AND ALS. @POTUS, we look forward to getting to work and building a future together without ALS.
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    I AM ALS
    @iamalsorg
    Sep 7, 2022
    BREAKING: the Advisory Committee has voted IN FAVOR of approval for #AMX0035! The final vote count was 7 Yes, 2 No. This does not guarantee FDA approval, but it is a monumental step on the path to approval. To everyone who shared their stories: thank you!!
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    I AM ALS
    @iamalsorg
    May 10, 2021
    Imagine belting a Taylor Swift song while playing a Taylor Swift guitar signed by @taylorswift13 herself. Would be amazing, right? Check out how you can make that happen. Thank you @RepublicRecords and @taylorswift13 for helping to make hope real.
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    Taylor Swift Signed Acoustic Guitar Featuring folklore Album Artwork
    From charitybuzz.com
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    I AM ALS
    @iamalsorg
    Nov 26, 2023
    Ending Thanksgiving weekend on a thankful note… for all that’s been accomplished thus far, and all we WILL accomplish with the amazing support we’ve gained along the way.
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    CBS Sunday Morning 🌞
    CBS News
    @CBSSunday
    Nov 26, 2023
    COMING UP: Two years later, Lee Cowan checks in with Brian Wallach to learn how he and I Am ALS successfully advocated for the Act for ALS, securing over $100 million annually for five years to fund diverse ALS initiatives. cbsn.ws/3Rg3VcM
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    I AM ALS
    @iamalsorg
    Nov 2, 2023
    Ady was a true trailblazer. He laid the groundwork for so much of what this movement stands for and has become. He will be terribly missed.
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    Ady Barkan, Who Used His Illness To Advance Progressive Causes, Dies
    From huffpost.com
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    I AM ALS
    @iamalsorg
    May 28, 2024
    A shoutout from @BarackObama was not on our 2024 bingo card, but boy will we take it!!
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    Barack Obama
    The Office of Barack and Michelle Obama
    @BarackObama
    May 28, 2024
    When Brian Wallach was diagnosed with ALS, he was given six months to live. @bsw5020 and @sabrevaya’s film, For Love & Life: No Ordinary Campaign, chronicles their incredible journey, and proves that all of us are far more powerful than we know. I hope you’ll watch it on Prime
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    I AM ALS
    @iamalsorg
    Feb 8, 2023
    I AM ALS is appalled by Cigna’s decision to not cover an FDA approved treatment for ALS that extends functionality & life. Cigna needs to immediately reverse this decision. People living with ALS deserve better and don't have time to wait while battling an always fatal disease.
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    I AM ALS
    @iamalsorg
    Oct 2, 2023
    There are no words to describe the loss being felt by so many after Chris Snow's passing. Chris did so much to bring ALS to the forefront, but more importantly, he was a doting husband, a loving father, and a wonderful person. @kelsieswrites, thank you for sharing him with us.❤️
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