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Long Covid Support
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Long Covid Support
@long_covid
UK charity dedicated to supporting people with Long Covid • Support • Research • Advocacy • Education •
UK
linktr.ee/longcovidsuppo…
Joined July 2020
1,703
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  • Pinned
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    Long Covid Support
    @long_covid
    Jan 19
    We’ve decided to leave X, as it no longer feels like the right place to support our community. We found each other here in the earliest days of Long Covid, and we’ll always be grateful. Thank you. Find us on 🔵 Bluesky: @longcovidsupport.bsky.social 🟠 Instagram: @LongCovid
    Graphic with a teal background reading “Long Covid Support is leaving X.” Below, it says: “We found each other here in the earliest days of Long Covid, and we’ll always be grateful for this community. Thank you for being part of it.” Long Covid Support logo appears at the bottom.
    3.8K
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    Long Covid Support
    @long_covid
    Oct 11, 2022
    Young British tennis player Tanysha Dissanayake announces her retirement from the sport at the age of 21 because of #LongCovid. Our best wishes go out to Tanysha. Find her on Instagram here: instagram.com/p/Cjinh4ftbo3/
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    Long Covid Support
    @long_covid
    Nov 21, 2024
    🚨Chair @covidinquiryuk interjects on @MattHancock’s evidence on NHS care: “I don’t understand how you can maintain that it was right to stop non-urgent elective care and then say it was always available to all according to need, because it wasn’t, was it.” #LongCovid
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    113K
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    Long Covid Support
    @long_covid
    Sep 12, 2024
    🚨Dr Barry Jones (CATA) at #CovidInquiry: “It was defined as aerosol transmitted from the very moment it came in to the country, it was an airborne highly consequential infectious disease. As indeed SARS1 & MERS were & still are.” #LongCovid #WeNeedAnswers
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    261K
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    Long Covid Support
    @long_covid
    Oct 8, 2024
    🚨@covidinquiryuk Prof Bamrah (@femho2022) on absolutely appalling treatment of a medical Consultant: “She was told by the medical director that if you ask for a mask, if I see you with a mask I will discipline you… she did catch #Covid… was DNR’d twice…She’s got #LongCovid”
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    284K
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    Long Covid Support
    @long_covid
    Jan 8, 2024
    🚨 We are hearing more and more reports of clinical referrals being rejected if there is mention of #LongCovid, despite people having significant symptoms that need specialist investigation. Who else has experienced this? #TreatLongCovid #LongCovidRuinsLives
    A letter stating: “Thank you for your referral letter regarding the above gentleman. This was discussed at our MDT meeting on the 02/01/24.
We are writing to inform you we are declining the referral. Neuropsychiatry is not commissioned to see clients who are experiencing symptoms associated with Post/Long Covid.”
    332K
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    Long Covid Support
    @long_covid
    Jun 19, 2023
    Please @robbiewilliams stop and listen to your body. You can't continue to do what you are doing and get better at the same time. Don't try and be a hero pushing through. You need to rest. #LongCovid
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    nine.com.au
    Robbie Williams halts performance mid-concert: 'Stop, stop'
    43K
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    Long Covid Support
    @long_covid
    Apr 15, 2023
    "People in the UK seemed to have forgotten about aerosolised spread. We really need to wear the appropriate filter masks, improve indoor air quality & ventilate rooms.” @SGriffin_Lab Agree 100%! #WearAMask #CovidIsNotOver #CleanAir #LongCovidAwareness
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    Expert calls for more mask-wearing as new Covid variant found in UK
    From mylondon.news
    70K
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    Long Covid Support
    @long_covid
    Nov 21, 2024
    🚨 Astonishing evidence at @covidinquiryuk from @MattHancock on hospital testing & nosocomial infection: “Some hospitals did not want to test their staff because they might find too many staff with #Covid” ‼️‼️‼️ #LongCovid #WeNeedAnswers
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    73K
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    Long Covid Support
    @long_covid
    Sep 16, 2024
    🚨Dr Lisa Ritchie, NHSE Infection Prevention & Control is asked at #covidinquiry if #CovidIsAirborne: Q. Is that still your position after all the evidence we’ve heard, the primary mode of transmission for #COVID19 is droplets & contact? A. That’s my position ‼️‼️ #LongCovid
    Woman wearing a blue shirt and dark jacket sat behind a desk with a microphone in front of her. Subtitles read “for Covid 19 is droplet and contact that’s my”.
    123K
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    Long Covid Support
    @long_covid
    Dec 26, 2023
    🚨From @LOCOMOTIONstudy - impact of #LongCovid on productivity: ❗️51.7% reduced paid work hours ❗️Mean monthly work income ⬇️ 24.5% ❗️Average aggregate value of productivity loss since incident infection, extrapolated nationally: 🚨£5.7 billion🚨
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    Impact of Long COVID on productivity and informal caregiving
    From link.springer.com
    279K
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    Long Covid Support
    @long_covid
    Nov 29, 2023
    ‼️📹 #CovidInquiry More on #LongCovid put to Javid by Joanne Cecil: - Why was there not a public awareness campaign warning people of the risks of Long Covid?” - “Was any thought given to a public campaign?” Javid fails to directly answer. Cecil: “The short answer is no”
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    113K
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    Long Covid Support
    @long_covid
    Sep 12, 2021
    "Fauci Warns of Troublesome Long-Term Effects of COVID-19 in Young People" “We’d better be careful when we say, ‘Young people who don’t wind up in the hospital are fine, let them get infected, it’s OK.’ No, it’s not OK." #LongCovid
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    Fauci Warns of 'Troublesome' Long-Term Effects of COVID-19 in Young People
    From ny1.com
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    Long Covid Support
    @long_covid
    Oct 3, 2023
    Today we found out that @BorisJohnson scrawled 'BOLLOCKS’ across a @DHSCgovuk document about #LongCovid He admitted in his witness statement that he didn’t believe that #LongCovid ‘truly existed’ We now know that he thought it should be dismissed as a form of ‘Gulf War Syndrome’
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    93K

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