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charlos
@loscharlos
😎🌁🎷 #LongCovid March 2020 😵‍💫
San Francisco, CA
Joined August 2020
1,566
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  • Pinned
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    charlos
    @loscharlos
    Mar 30, 2022
    Thx @guardian for inviting me to share these #LongCovid questions. One of the most agonizing parts of this condition has been waiting for the world to catch up with what we know about the disease - & the abysmal lack of urgency to do anything about it. /1
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    We need answers to these four long Covid questions | Charlie McCone
    From theguardian.com
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    charlos
    @loscharlos
    Mar 16, 2022
    Hi my name is Charlie and #LongCovid has destroyed my life. Today is two years.  Before my 'mild infection' I was a healthy fit 30 year old biking 10 miles a day. Now I can't work or leave the house. I still can't breathe right. It‘s a nightmare. Here are my 4 questions:
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    charlos
    @loscharlos
    Mar 16, 2022
    Replying to @loscharlos
    2. Why still no robust health warning?  Whether #LongCovid prevalence is 5% or 50% (meta-analysis has 20-30%, 10% if vax), most conservative estimate is 1/20 people! A "medically rare event" is 1/1000. If you work in govt, media, or medicine, your silence is immoral & cowardly.
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    charlos
    @loscharlos
    Mar 16, 2022
    Replying to @loscharlos
    4. What is our **plan** to help people who've lost their jobs & housing due to #LongCovid?  My short term disability runs out soon & I haven’t a clue what I'm going to do. This is a disaster. Long term disability is being flooded & has been denying majority of LC patients.
  • user avatar
    charlos
    @loscharlos
    Mar 16, 2022
    Replying to @loscharlos
    3. Why haven't we started meaningful trials for #LongCovid?  We have dozens of promising case studies that should have prompted trials a year ago. This is where I'm genuinely confused. Lack of action doesn't make sense economically, politically, or medically. It's just insane.
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    charlos
    @loscharlos
    Mar 16, 2022
    Replying to @loscharlos
    1. Why don't we have diagnostics yet for #microclots? It's simple test that could provide a biomarker for millions. Every patient in research setting has these detected.  This should be priority #1. Easy to do & immediate implications for treatment. Current absence is a failure.
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    charlos
    @loscharlos
    May 26, 2022
    We have a virus ripping through this country at an infectious rate bordering on measles that is giving 1 in 5 people a new health condition - and we have zero mitigation efforts in place. It sounds so crazy to say that out loud.
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    charlos
    @loscharlos
    May 25, 2022
    So just to recap: Yesterday the @CDCgov acknowledged that 1 in 5 people will develop a new health condition (#LongCovid) after infection. Then today, the biggest study to date notes vaccines only reduce Long Covid incidence by 15%. Anybody want to talk about this?
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    charlos
    @loscharlos
    Sep 23, 2025
    “Only after 5 years #LongCovid has surpassed asthma as the most common chronic illness in children. I am terrified for the children who do not, or soon will not, know a world with out debilitating pain and exhaustion… I am furious on their behalf.” — Violet Affleck
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    Dr. Lucky Tran
    @luckytran
    Sep 23, 2025
    “We are told by leaders that we are the future. But when it comes to the ongoing pandemic, our present is being stolen right in front of our eyes.” Incredible speech by Violet Affleck who warned about COVID & Long Covid, & advocated for masks & clean air at the UN today!
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    175K
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    charlos
    @loscharlos
    Jan 24, 2025
    “Researchers from the Institute of Science Tokyo and Osaka Medical and Pharmaceutical University said that they have developed a peptide that can bind to the spike proteins of SARS-CoV-2 to prevent COVID-19 infections.” #LongCovid
    Screenshot of an article headline from Japan Times reading, “Japanese researchers develop peptide preventing COVID-19 infections” Date: January 23, 2025
    207K
  • user avatar
    charlos
    @loscharlos
    May 26, 2022
    People are literally just looking at the latest #LongCovid data and going: "Well I hope it's not true". ITS TRUE.
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    charlos
    @loscharlos
    Jan 2, 2022
    32 today, so far I’ve spent my entire 30’s w/ #LongCovid 😵‍💫 ~ Haven’t been able to leave the house for a meaningful outing since last Spring. This year I’d love the world to start responding with the urgency required to address the greatest mass disabling event in history. 1/4
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    charlos
    @loscharlos
    Sep 6, 2024
    OH MY! WHAT ON EARTH COULD IT POSSIBLY BE?! #LONGCOVID
    Screenshot of a Reddit post in the sub Reddit economic collapse, posting a graph demonstrating millions of workers are missing from the workforce compared to pre-pandemic. The OP has no idea what is going on because public health authorities and this pathetic administration has completely erased the reality of long Covid from the public conscious.
    243K
  • user avatar
    charlos
    @loscharlos
    Dec 27, 2024
    #LongCovid
    Screenshot of an article headline from the Rolling Stone magazine reading “First they got long Covid. Then, it made them homeless. It’s estimated millions of Americans have developed chronic illness after result of COVID-19 infection. For some – especially those in the gig economy – it made them unable to support themselves.”
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    Nina Turner
    @ninaturner
    Dec 27, 2024
    The 12% increase in homelessness last year was a record. This year, it rose 18.1%. Americans need and deserve a housing guarantee. No one should be sleeping on the streets in the wealthiest country on earth. The billionaire-class is getting richer while the people suffer.
    259K