Pinned
A gentle reminder - “by the end of this year (2017) no child will wait longer for a scoliosis procedure than 4 months”. Aug 2018 and children continue to languish on lists. Do you still feel ashamed @SimonHarrisTD ?
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The Scoliosis Advocacy Network #BackUs
21.3K posts
The Scoliosis Advocacy Network #BackUs
@scolionetwork
Founded by @chelleylong @clarcahill - Access to quality & timely #scoliosis assessments & treatments is a children’s rights issue.
- Simon Harris was in Kilkenny but made no effort to meet with us—the families fighting for our children’s right to timely care. He chose not to meet. He chose not to listen. He chose not to engage. Simon Harris has repeatedly ignored the voices of children and families impacted
- The figures quoted by Simon Harris last night #LeadersDebate are misleading and selective. @SimonHarrisTD The number “35” only refers to children waiting for spinal fusions (end 2019), ignoring those waiting for other critical spinal #scoliosis surgeries. At our first meeting
00:00 - William Clooney speaks of his son Cathal who went in to Crumlin for a #scoliosis surgery … a surgery that should have helped him. Six weeks later, Cathal was dead. William is speaking out because Cathal’s death must be investigated and nothing short of a full public statutory
00:00 - We need more politicians like @catherinegalway “You will not be having my support” “Having no sense whatever what a republic means & what public services truly mean & what equality truly means” @SimonHarrisTD you made a promise to our children that you never kept @SBH_PAG
00:00 - Simon Harris, you promised to meet with us 4 months ago, just like you promised children would wait no longer than 4 months for #scoliosis surgery. @SimonHarrisTD ⏰🚨Yet Paddy has been waiting 4 years. 🚨⏰ @megzsmurfy The distress caused to families is immeasurable. This
- Well, that was both underwhelming and patronising – hearing @SimonHarrisTD talk about listening to peoples lived experience when he chose not to meet with us or @SBH_PAG, despite committing to do so. To make matters worse, he was fact-checked by The Journal on the figures he
00:00 - This clip perfectly captures the disconnect between @SimonHarrisTD and parents/carers. He dismisses concerns, refuses to listen, and dodges accountability. From denying involvement in the New Childrens Hospital to disowning 4-month #scoliosis targets—he only claims credit whenFine Gael leader Simon Harris was approached during a canvass this evening by a woman who says she is a carer, and who said she believes the Government has "done nothing for us" | follow live: rte.ie/b/1482316
00:00 - @SimonHarrisTD has failed to meet with us and @SBH_PAG, despite his prior commitment to engage with the two main advocacy groups representing children with #scoliosis and #SpinaBifida. Once again, he has turned his back on the families we represent, choosing PR over meaningful
- The reality is @SimonHarrisTD isn’t working with affected families. Parents don’t trust him after his broken promises on timely care, enabling @CHI_Ireland to evade accountability while children become inoperable. @DonnellyStephen can’t affirm confidence in the CHI board, yet"You've obviously decided 'I am living rent free in your head'," Simon Harris told Mary Lou McDonald after she accused the Government of failing to make any provision for the treatment of children with scoliosis in the Budget
00:00 - Another child failed @SimonHarrisTD @CarrollJennifer #scoliosis @CHI_Ireland yesterday we saw 3 parents post online about their child’s wait for care. What is going on ? @BernardGloster
- Who’s in the Minister’s ear when she says “not every child needs surgery within 4 months”? Properly managed care means children aren’t listed until they’re clinically ready … and cases can be suspended if not. Once a child is listed, there is no benefit to waiting,Matt questions the Health Minister on why scoliosis surgery targets haven’t been met after 8 years ⏱️
00:00 - As parents and part of the Scoliosis Advocacy Network, we were deeply disturbed by An Taoiseach’s angry response to @MaryLouMcDonald in the Dáil yesterday. His frustration was misdirected at her, not the system that has failed children like Harvey. It’s not @SimonHarrisTD roleLeaders' Questions - Wednesday, September 18th, 2024 Taoiseach, your treatment of children with spina-bifida and scoliosis is disgraceful - Harvey Sherrat has both, his ribs are crushing his lungs leaving it almost impossible to breath. And still his is left waiting for
00:00 - Michael Barry, 10, was diagnosed with scoliosis at the age of four. Despite being diagnosed with #scoliosis six years ago, Michael underwent his first x-ray for the condition in October, 2022. @OCO_ireland @DonnellyStephen @AnneRabbitte @HSELive
