the only way to get there is to go straight down

Lately I've been wishing for a BPD episode. Anything to shake up the dank, dreary depression that's threatening to block out the whole world. I remember hypomania with fondness... I miss anger, rage, fury - emotions of any kind - as lately I seem to be a blank/black canvas. I'm barely managing to keep my job, getting to work about two days out of five, spending the rest of my time sleeping. I used to blame my anaemia for the sleeping... but lately I've realised that the iron infusion must have kicked in by now, and therefore depression is probably the cause. If I'm honest, this spell of depression has been creeping up on me for months, starting before I raised my Cymbalta level to 120mg. Changing that medication has done nothing, supporting the research I keep reading about which says doses higher than 60mg are pointless.

I don't get paid for the days I'm having off, so I haven't been able to afford to see Doc A. But I'm making the effort this week, and scraping the cash together, as the situation is getting dire. I know he will suggest starting Lamotrigine, as that was one of his suggestions last time. I don't know why I'm on the fence about Lamotrigine...part of it is the cost, especially now I'm verging on unemployed, and part of it is because it's always been in reserve. For "just in case". If I start using Lamotrigine, what will I have left for next time the medication fails me??? More Lamotrigine I suppose.

I spent another day in hospital last week, having upper and lower gastrointestinal tract exams to check for bleeding. Nothing showed up, so my anaemia is unexplained. The haematologist believes it's related to my weight loss surgery. Regardless of the cause, I am still as light-headed and exhausted as ever. I have the Ignite Your Life course this weekend, Friday to Sunday, and I'm dreading it. I have no idea how I will manage to be upfront, present and awake for all those hours, when I usually spend half the weekend asleep. I'm desperate for some relief from this depression, though, and anecdotal evidence suggests this course can provide it. My parents and brother have done the course, and found it inspiring and energising and claim there were a few people who were previously medicated for depression (unipolar and bipolar) that now no longer need medication. I'm skeptical. And don't intend to give up my medication for anyone/anything. I'm a true believer, even though at the moment it doesn't seem to be doing much for me.

I was talking to my family about this course a couple of weeks ago and confessed that I really don't think the course organisers will have come across anyone as lunatic as me. Anyone as recidivist and recalcitrant. Are they prepared for someone whose only goal in life is to not complete suicide? They sent out this pre-course questionnaire and it had all these questions like "What are you most proud of?", "Name four emotional states you regularly experience", "What are your motivations for doing this course". Even reading the questions made me exhausted and hopeless. "How would you describe yourself" was one, and my immediate answer was "fat, fucked, failure". I can't decide if right now is the best or worst time for Ignite Your Life... most of me, the hopeful part, believes that things happen for the right reasons, and therefore it must be the best time. I really, truly hope to experience some life-altering changes. I can't wait to update you all next week.

I'm sorry I haven't been commenting as much on your blogs as I have in the past. I feel like anything I say will be negative and pointless, so often I will stay silent. But I'm still reading, and I hope everyone who's going through a hard time right now will soon be on an upswing. Lots of love to all xx

ain't nobody who can sing like me

The improvement is slight but it's definite. A few days ago I started taking my Cymbalta at night instead of when I wake up, as I thought it might help with the early morning moodiness. Although my sleep has suffered, and I wake up more easily through the night and don't feel as "rested", there seems to be a marked difference in my morning attitude. Whether this is just because the increase to 120mg has started to work (Doc A said it would take a week to feel 10% better), who knows, but I'm grateful for the improvement. I don't feel the dragging, energy-sapping dread upon waking. I'm almost "perky". Well...almost!! I'm planning to continue the evening dose as long as I don't start waking up early (pre 6.30am), start to feel extra tired during the day, or get manic. I'm still averaging seven or eight hours of sleep a night which is less than I usually need but still plenty.

The last couple of days have seen the suicidal thoughts almost disappear. I can't describe what a relief that is, and anyone who has been there will know exactly what I mean. Part of the relief is that I now feel enthusiastic about my upcoming birthday (Sunday 19th). We have some great plans, so I was feeling very depressed about being depressed (LOL). Now, for the first time in quite a few weeks, I feel life coming back into my heart and mind and excitement starting to build. Hooray for turning 41! I have to say, so far being in my 40s has been wonderful (-: Meeting Neil was one of the best things to ever happen to me, and I'm so thankful he has put up with me and continued to be calm and stable and love me through this last bleak episode. I guess it really is true love!

My plans for my birthday are as follows: Saturday night we are going out to watch a Roller Derby bout with some of Neil's friends from work. Then the two of us will go on to a strip club, just for a laugh and to hopefully get in the mood for some hijinks in the bedroom *blush*. We've been to this particular club before and enjoyed some lapdancing; Neil loves the fact that I am openminded and keen on this kind of thing. The girls there are really nice and sweet, and are always extra friendly to women. On Sunday we are going out to the movies to see Super 8 (even though I am petrified of aliens and I think this movie is about aliens!!) and then out for a pizza dinner with my parents. Monday night I am going out with Michelle to see Bridesmaids, which I can't wait to see. I've heard so many good things about it! So all in all I think the next few days are going to be super fun. One of the things I love most about my birthday is my friend H always sends me the BEST presents. Well, last year she was visiting so she gave them to me in person, but as she lives in a different state she usually posts them and isn't it fun to get packages in the mail?? I LOVE it. We are both into the same girly, selfhelp, pink, Barbie, princessy type things so I always love her presents. She spoils me rotten.

I know I'm starting to sound like a broken record, but thank you SO MUCH to everyone who commented on the last few posts. I hadn't realised that I was having some BPD issues with Neil until your comments pointed it out, so massive thanks. Big hugs to my darling Kate (Lucid Intervals), BPDisme2, Shattered One (Walking the Borderline), Afton (In the Pink), Pixie (Cloud Illusions), Saracide (Borderline Psychobabble), Sairs (This Lunatic Express), Linda (Blue Skies, Cloudy Days), D'Artagnan (Living in Iowa), and a smiley welcome to Lola (Moose Lips Sink Ships) and www.friendtoyourself.com

I really love Billy Bragg, and he recorded a great song with the band Wilco called Way Over Yonder in The Minor Key (previous post title). The second line to the chorus is "ain't nobody who can sing like me", hence the title for today. The song was used nicely in the recent rom com movie Love and Other Drugs, which starred the gorgeous Anne Hathaway. Did anyone see the film? I thought the themes were interesting, especially how much time, money and energy went into finding a successful drug to "cure" male impotence compared to drugs to cure Parkinsons Disease (and also, I believe, to find cures for illnesses like depression, and other girly things like PMT haha).

That's all from me for now, and I can't help but be hopeful that my positive mood lasts and that the next post will be just as sparkly. Wishing you all love, happiness and peace xx

born to try

Updating on yesterday's post, I'm feeling slightly stronger. I laid it all on the line to Doc A and he was angry I hadn't let him know sooner. I told him I struggle with my identity in therapy - for instance, he often tells me I am the "perfect" patient, or a "good" patient, and I hate to let him down and lose that validation. I don't want to admit to him that I am suffering suicidal thoughts, or languishing in the doldrums. It's really stupid. Honesty is the cornerstone of therapy, after all, so I'm accomplishing nothing by lying or avoiding the truth.

Anyway, after asking a lot of questions about potential triggers and behaviours, Doc A decided that this latest slump of mine is not BPD related, and in fact is "simple" biological depression. So the solution is medication tweaking - I am testing out 120mg of Cymbalta daily for the next week and if that has no effect I have a prescription for Lamotrigine/Lamictal. Which I would take in addition to the Cymbalta. I feel kind of trendy, even being considered for Lamotrigine, because I know a few other bloggers who take it and it seems to be quite successful. Apparently there is a well-known side effect of "Lamotrigine rash", and if that occurs I have to stop taking it. I'm hoping that the extra Cymbalta does the trick, because that way I have the Lamotrigine in reserve for any future episodes. It truly sucks the way that medication "poops out" (Doc A says this is the technical term LOL) and our brain chemistry works its way around our meds. I wish it was as simple as finding one medication and sticking to it for the rest of my life. I know I'm not alone, but in the last seven years I've taken eight different anti-depressants and an anti-psychotic. Apart from the meds, I've also tried Kava, St John's Wort and Valerian. Then when you add to that the hypnotherapy, acupuncture, Chinese medicine, naturopathy, etc, it's all a little overwhelming. I know y'all can relate!!

I ended up telling Neil about my suicidal thoughts; even though I knew it would worry him I couldn't keep lying. I'm pathologically honest these days after The Marriage That Truth Forgot. He was concerned, and interested in what Doc A had to say, and ultimately said he was happy I had confided in him. We're both confident that the extra medication will help level out my moods.

In other health news, I have an appointment with Dr Paul (my lupus specialist) on June 29th and am on the waiting lists at three hospitals for my gastroscopy/colonoscopy to check for ulcers/polyps/etc. I've been on iron supplements for a couple of weeks and I feel slightly less tired (which could be the caffiene tablets I'm taking!) and breathless. I feel like my health, both mental and physical, is a waiting game at the moment. Just need to be patient and see how it pans out... Need I point out that patience is NOT one of my virtues (-:

Thank you so much to everyone who commented on yesterday's post, and to Linda who posted a great song on her blog for me. It means so much that people are listening and understanding xx

(NB: Born To Try is a song by an Aussie called Delta Goodrem, who I believe appeared on the US version of Dancing With The Stars recently.)

falling from the heartbeat of this girl

I saw Doc A on Friday, for the first time in over a month - probably the longest stretch I've been "psych-free" since I started treatment in Feb 2009. The session was good, primarily because he validated all the issues I've been having since I went off the Solian (anti-psychotic) and basically advised me to keep doing what I was already doing on my own - namely go back on the Solian and try to maintain mindfulness with my eating and shopping binges. He seemed adamant that I've proven I need the Solian, even in the small dose I'm taking. I think that having a period off the medication, during a stress-free and trigger-free time in my life, was a good "test". I am okay with needing the Solian. It's primarily for schizophrenia, which I don't have, but is also proven to work for BPD and OCD in conjunction with an anti-depressant.

So I have been taking the Solian again for a week and feel markedly improved. My mood is better, I feel less "split" and distracted, I have managed to reduce my binges (both eating and shopping), and overall I am less anxious. Had a great weekend with Neil, finally met his mother which was a lot less scary than I'd imagined LOL, and some more of his friends. Also spent time at my place with Michelle, who gets on famously with Neil. It is such a relief that they are compatible, and there are no issues, as one of the other guys I dated this year, Lloyd, triggered massive (justified) anger from Michelle. He really was a jerk. Sometimes I have to pinch myself, metaphorically, to make sure I'm not dreaming the fact that I now get to hang out with someone as generous, loving, fun and kind as Neil. Did I tell y'all that we met on an internet site that is primarily for sex and hookups than for actual romance and dating?? SO WEIRD. I had grown tired of the metrosexual passive types I was meeting on the traditional dating sites, so put my profile up on a site more "out there" - and ended up meeting one of the few men on that site who actually was after more than just a one night stand. How funny. Neil told me afterwards that he didn't realise that site was known for "swingers" and the like! Jeez, I do love him.

Post title is from one of my fave songs at the moment, Angus & Julia Stone's "and the boys". They are an awesome brother/sister duo from Sydney. Here's the film clip for those who are interested...

should be hoping but I can't stop thinking

No matter how much I think I've changed, or "recovered", there's always the Big Dark hovering the background waiting to devour. Lately it's been creeping around making its evil presence felt in subtle ways. A couple of episodes of binge eating. Some temper tantrums. Shortness of breath, tightness of chest. Whether it can be blamed on PMS or the medication change is something that will come to light in time, but the overall negativity of mood at the moment is scaring me shitless. Housemate Michelle said to me last night "What's your problem, you've got a job, somewhere to live, a boyfriend..." and although it was said entirely in jest, she really has a point. Outwardly, there is no reason for my uneasy feeling. No external trigger for these nerves that are starting to stretch out like barbed wire.

I am considering going back on the antipsychotic, Solian. I definitely wonder if the binge eating is related to going off the meds, as one of the main reasons for Doc A prescribing it was to help with my eating. I've started "inhaling" food again, instead of maintaining mindfulness and enjoying food in a relaxed and slow way. I ate a huge bag of potato chips in less than half an hour on Monday, and then polished off a number of chocolate bars. It reminded me of the bad old days before my weight loss surgery when I would regularly binge like that. I have no idea what triggered it, if anything. Although there have been some nasty thoughts hovering around lately.

As much as I am happy and in love, and definitely feel "loved", part of me wonders when it will all start to go bad. When Neil will see how pathetic and ugly I am, when he will realise the huge mistake he's made, when he will run away and never look back. It's a constant struggle to keep these stupid, pointless, damaging, groundless fears at bay. If a short time passes when we don't have sex, I think "It's the beginning of the end, he's gone off me already." If he doesn't text me until lunchtime I think "Remember the beginning of our relationship, when the first thing he did every morning was text?" Who am I to second guess and question such a decent and honest man?? I don't deserve him if I'm going to act in such a self-destructive way.

One of the things I constantly say, and believe, is that relapse is part of recovery. I suppose this is one of those moments of relapse, when old habits and thought patterns threaten to sabotage my current happiness. I'm trying so hard not to be terrified that the Cymbalta is losing effectiveness, and that another breakdown is imminent. So far I am managing to keep up at work, and still show a fairly cheerful front to Neil and everyone else. The Big Crazy is still held at bay, which is something positive I suppose. While I maintain control, and have insight, I have hope that I will get through this time of darkness.

*Post title is from This Woman's Work (Kate Bush) - melancholy as suits my mood...

lucky just to linger in your life

I've been absent from here again, caught up in the blissful ordinariness of life. It seems that I blog more regularly when things are bleak, so rest assured if you haven't heard from me in a while it's because all is well. It seems so trite to post the positives, even though I know people are happy to hear them.

My bloke, Neil, is lovely.


He listens to my complaining, laughs at my lamest jokes, cooks me delicious meals and buys me stuffed toys and flowers. He's fun and fabulous in bed! Sometimes I have to pinch myself to make sure it's not a wonderful dream I will wake up from to find myself lonely and alone. Having someone in my corner, on my side, is an amazing feeling and I am SO LUCKY. I accidentally called him by Mr Ex's name the other day, due in part probably to the physical resemblance but also because I spent ten years using Mr Ex's name. Neil took it in his stride and didn't get upset, which was a relief. I felt awful, because in no way does Neil remind me of Mr Ex in any way apart from the superficially physical. I think he knows that, which is why he was okay with my little faux pas!

Apart from ye olde love life, things are fairly stable. Work is going well, I now work three days a week (Tues - Thurs) and then have a four day weekend every week - which I gotta tell you, rocks!! Neil has Sundays off, and mostly Mondays, so we often spend a couple of days overdosing on each other. I am incredibly relaxed with him, even naked LOL. This is probably TMI but for the first time I feel like I have the opportunity and the support to just let go and have fun in the bedroom. We're both experimental and openminded and really match each other well. Which, as regular readers will know, is the opposite to Mr Ex. I always thought I was oversexed, or weird, but being with Neil shows me that it wasn't me who had the problem all those years...

Doc A suggested I was stable enough to go off the anti-psychotic (Solian), which I did a few weeks ago. I haven't really noticed any difference, and thankfully the OCD hasn't returned and I haven't been binge-eating. Doc A also pushed out my appointments to once a month rather than once a week, which suits me as there doesn't seem to be a lot to talk about lately. Unlike other relationships, I'm not black/white, obsessive or game-playing with Neil, and we are building a good level of trust that keeps me comfortable. I keep expecting problems to crop up, for triggers to go off, but so far the last couple of months have been placid. No doubt something will come along to derail or perturb me! But meanwhile, I am enjoying the smooth ride.

greetings loved ones

Ticking along, ticking along. Life continues to surprise and delight me with its evenhanded sweetness. I am steadily growing fonder of The Man (Neil), who loves to buy me flowers and cheesecake and recently cooked me the best roast dinner I've ever eaten. We talk every day, and each time we see each other it's the perfect mix of excitement and relaxation. Weird, but it feels like we've been dating for years already. Did I tell y'all he bears more than a passing physical resemblance to Mr Ex? It freaks me out sometimes, makes me wonder whether there is something sick and twisted going on in my subconscious. Michelle, housemate, says as long as Neil doesn't resemble Mr Ex in character then that's the most important thing. But it's twelve years since Mr Ex and I first hooked up, so who would know what he was like then, before the marriage rot set in and the sexual ambivalence started to send me mad... I tend to think that Neil is made from stronger stuff, and much more focused and passionate than Mr Ex ever was. And if his only major flaw is that he is of similar build and colouring as my ex-husband, then Neil is definitely a keeper.

I've told Neil about the coincidence, and he is conscious of not reminding me in other ways of Mr Ex. I think I will have to run it past Doc A and see what he thinks, whether he's concerned that I am reliving the past or trying to subconsciously return to those dark days of unhappy matrimony.

In other news, my Cymbalta side effects have all but disappeared. I've been taking it (60mg) for almost 2 and a half months now, and it's still working a treat to keep me activated and stable-minded. At first I had wicked constipation (TMI? Sorry!), cotton mouth and a few troubles with orgasm, but thankfully all those things have passed. Doc A promised they would, but naturally I thought I knew better LOL. I'm finding that my weight has dropped slightly, as my appetite seems decreased, which is always a benefit. It's one drug I wouldn't hesitate to recommend. Combined with the 50mg of Solian I am taking, it's really helped me to turn things around from where they were in dismal May. Most of the time I feel mellow, cheerful, positive and full of potential. Work asked me to increase my hours, which I'm happy to do now I'm stable again, which shows they must think I am "well" and functioning.

As good as the Cymbalta is, though, I think it's just as empowering and enriching to have someone kind and loving in my life. Someone who tells me how much I mean to him, and reinforces my positive thoughts and qualities. Someone I inexplicably feel physically comfortable with, and who "lights my fire" on a regular basis (-: I am officially resigned from the dating sites now, and am focusing my attention on the relationship I have, here and now. He called me his girlfriend the other day, and damn if it didn't feel good...

(title of post from Katy Perry's California Gurls)

six months on, the winter's gone*

My friend Michelle and I submitted an application for a rental house this morning. Very VERY exciting, and also completely terrifying (in the way of all great things lol). Am I sane enough to leave the comfort and safety of sharing a house with my parents? Can I keep working and therefore support myself financially? How will it feel to have to leave my dog and one cat behind, as logistically there is no way my new arrangement can include them? These are all things I believe I can overcome, mostly because there is NO OTHER CHOICE. I simply cannot remain in this state of flux that I've inhabited since I split up with Mr Ex and began the long process of becoming mental. I refuse to get left behind as the rest of the world, and the potential of my life, moves on without me. I feel compelled to get out there kicking and screaming, which may just be a side effect of the atypical anti-psychotic but what the hey...

It's a small-ish, grotty-ish duplex, with two bedrooms, fairly big living area and a small study nook type thing. Crapola backyard. Has my main requirement - a bath tub. One addiction I don't need to get rid of - phew. It's a mauve-lilac purple bath, actually, tres posh. The place also has ceiling fans (bonus, as jeez it's getting hot in here), a new stove, built-in robes and is 30 mins from my workplace. Currently I spent 1.5 - 2 hrs travelling each way, and oh man am I OVER that. There's a lot to be positive about, even though Michelle and I jokingly call it the "Juliette Lewis skanky duplex". It's also extremely cheap - $260 a week (for my O/S friends that's approx 138 GBP, $230USD) which is $40 a week less than most of the places we've looked at. 80% of places in Perth are over $400 a week these days, which still freaks me out. Rents have doubled in the last ten years, and I can guarantee that my wages certainly haven't increased by that much.

Anyway, apart from that there's not much news. My nanna is fairly ill with a pulmonary condition and has pretty much been bedridden all week. Am fighting the guilt about the chance of me moving out and leaving her... I have a bastard head cold, which is annoying me, and it's hot again - yuck. I've been doing well on my current medication (40mg fluoxetine a day, 10mg amisulpride, plus supplements) and Dr A told me last week he was proud of the way I had managed my work issues and was moving ahead. I know he gets paid to "validate the Borderline" but it was still nice to hear. My family are also being extremely supportive, even though me moving out will leave them financially and logistically in a hard place. My mom especially will miss me, as I share cooking, shopping, supporting roles with her. But we are looking to the future, and I need to step out from under this codependency umbrella, ella, ella....


* Belle & Sebastian - 'My Wandering Days Are Over'

they call me mellow yellow, quite rightly

Greetings friends, my apologies for not updating sooner. Yes, the new medication (Solian) is working well - reducing the hair pulling and binge impulses, definitely reduced anger, and I am sleeping a lot better. It's a low dose but a good 'un! I see Dr A on Wednesday, after his month in Europe, and will be happy to report that things are fairly good. Certainly better than a couple of weeks ago.

My friend Michelle and I have our plans to move out together well underway. Sometime between now and February we'll be sharing a small house or a duplex/unit (I think y'all in the US call it a condo, like an apartment but bigger and usually with ground floor access?). We've seen a couple of places, and have narrowed down our search to a few key suburbs - all of which are closer to work than here. I am completely OVER the 1.5 - 2 hr bus trip each way. We looked at a place on Friday that was 10 mins walk away from work but sadly it had no bathtub and was suffering from a semi-permanent mould invasion. Ugh. I am so excited about living with Michelle, who is my closest friend and someone I can be honest with. She has been staying here on and off over the last few weeks and the more time I spend with her the more I am convinced that rooming together makes great sense financially as well as emotionally. Now we just have to find somewhere!

I start a three week course tomorrow on Flower Essences and herbal remedies, which is something my mom and I are interested in. It'll be nice to do the course with her, and I am also booked into a goal setting course next month. Hopefully I will still feel well enough to do the course by then...the problem with feeling well is that sometimes I commit myself to things that I end up regretting!

So far, the only side effect I've felt from the Solian is a dry mouth, and the fact that I'm slightly drowsy - but as I take it before bed anyway, that's no biggie. I'm finding that slightly numb effect to be welcome, even though mentally I struggle with the idea of blunting and how it detaches me from my necessary emotions of anger, frustrations, etc. I think that for the next few months, to find accommodation for next year and to finish my two courses as well as complete the semester at work, I need all the help I can get. Dr A says the ultimate goal is to reduce or stop medication completely, but it may take years to get there. I am so impatient, want everything now now now now now haha!! But I am trying to look at this as an investment, and will take the anti-psychotic while it helps.

Spending time with my friends and family has kept me away from my virtual world, and I MISS YOU ALL! Hope to catch up soon.

why is the last mile the hardest mile?

Three weeks ago Dr A gave me a prescription for an atypical antipsychotic, and tonight I started taking amisulpride (aka Solian). I wasn't keen to start a new medication while Doc was lazing on a beach in Portugal, but really, the last week has been hellish and I'm hoping for some kind of miracle. It's a low dose, but it's possible that it will help to stablise my moods and help with the trichotillomania, binge eating, angry freakouts, etc. When he wrote the script Dr A said it could keep me up all night, or help me sleep, and I'm desperately hoping it'll be the latter. So damn tired, so sick of the nightmares I'm having.

I took a personal day off from work today, after waking up with that utterly helpless feeling, knowing I would not be able to summon the strength to face the world. I spent the morning writing a list of all the crap I have to worry about, which (weirdly enough) helped. I'm now attempting to prioritise these things, and will work through them one at a time. Sigh. My dog had to have $500 worth of x-rays a couple of weeks ago, after rupturing her cruciate ligament jumping down from her groomer's table for goodness sake! Whose dog DOES that? So unfortunately, my divorce is temporarily on hold. But I still plan on doing it as soon as I save up the money again. I have also contacted Mr Ex regarding a few loose ends, possessions, etc, and it felt quite decent to be assertive. I am still overwhelmed with resentment and anger about a lot of things regarding our marriage/his lies. And I suppose one day that will all have to be dealt with.

I logged on here today and found I had one less follower. Nick Drake just the last straw, huh? LOL. My friend Kate once mentioned how easy it is as a blogger to place stock on who has you on their blog lists, and who follows you, and she is (as usual) right. It sucks that someone abandoned me while I was down!! I'm kidding, but you know what I mean, right? I have another friend who warned me, and rightly so, about the indulging in melancholy music when I'm already feeling low. I'm terribly prone to that, so have avoided all tear-jerking emo type music today! Apart from the blog post title, which is courtesy of Morrissey.

One of the bright moments in the last week has been my kick arse friends, in the real world and the virtual. It helps so much to know other people know what the black dog looks like, and how persistently he hangs around hoping for some scraps of sadness. Another bright spot was seeing Whip It - a movie that may be responsible for my unattractive and clumsy entry to the sport of roller derby!! If only I could a) skate, b) think of a good derby name and c) wear fishnets without resembling an overstuffed bag of oranges. LOVED the movie and am determined to live the tagline - BE YOUR OWN HERO!

you're an angry blade and you're brave

A small update post-conference. It's been, it's done, seemed moderately successful apart from the usual technical glitches and no-shows. Sir J has moved on to his next "gig", and I am enjoying a well-earned day off.

Tomorrow I have to go and have the MRI I've been avoiding most of the year. Dr A has often said it would be useful to see what effects, if any, my lupus has had on brain function (and, ergo, depression, headaches, mania, moods, etc). I guess it will be interesting to know if any lesions are present, not that there's much they can do about them. Maybe it will turn out that I have a cabbage in my head instead of a brain haha.

Increasing my dose of fluoxetine has not helped my OCD or binge eating at all, and Dr A is suggesting a mega-low-dose anti-psychotic be added to the mix. I would then reduce to my previous low dose of fluoxetine, as the Abilify (or whatever) will be activating enough. The meds merry-go-round is so annoying, and confusing. But it would be good to not be a slave to the trich and binge rituals... Any feedback or advice from y'all would be welcome, as I know Abilify is something lots of folks have tried. Apparently the risk of weight gain is less than with other a-p drugs?

So much going on, no wonder I find it hard to sleep through the night. I am determined to not start medicating for sleep, though, as I know it's a hard road to come back from. This may sound like a negative post, but I'm feeling well. Relieved the work situation will now wind down slowly until December, when the Foundation closes for a month.

(Angry Blade - Iron & Wine)

This Is What Today Feels Like

The last few days have been heading downhill. For a start, I'm getting closer to the dreaded luteal phase of my cycle, which triggers the PMDD symptoms. I've been thinking I should probably increase my fluoxetine dose to 20mg, especially as I have the added stressor of starting my new job next week. The timing sucks.

I wish I didn't have to wait so long before starting work. At first, I thought it was a great opportunity to get organised -- now, I remember how much of an enemy anticipation can be. With anticipation comes anxiety, uncertainty, "what if" scenarios, and an added need to practise my still fledgling CBT skills. I was supposed to start with my new psychologist MH this week. Although I waited 6 weeks for the appointment I cancelled at the last minute...I wouldn't have been able to continue with the appointments as they were all scheduled for work hours (made the appts while I was out of work), so I have re-scheduled the entire series of appointments for after work. The first one isn't until June 2nd, at least by then I will have some idea of my work circumstances and any issues that may have arisen there -- which I can work out in CBT with the new therapist. Still seeing Dr A once a week or every two weeks, he has one day per week when he works late so it can be hard to get the appointments. All in all, this says to me "Am I doing the right thing going back to work?" It's so much easier to see doctors, do homework, get prescriptions, etc, etc without having to be somewhere every day from 7:30 - 3:45pm.

I know, I know...all that is just an excuse and OF COURSE I can organise myself and get everything done even while I'm working full-time. I'm allowing practical concerns to mask the fact that I am flatout gut-twistingly terrified of going back to work. The last few days I have gone back to the safety and santuary of my bed, and back-to-back episodes of Buffy and NCIS. I've been mindlessly eating chips and bread and cookies, desperately lamenting the fact that I've given up my Diet Coke habit, and I've spent $200 on crap on Ebay. It's hardly the end of the world, or even the beginning of a breakdown, but these are warning signs.

So, I am going to take more Prozac for the next 10 days, and try to get out and exercise. I need to start this new job in a better frame of mind than the one I'm in today, and the only way that will change is if I MAKE it change. The bottom line is, my illness is never going to go away -- the only thing that is negotiable is how well I can manage it.

The Jagged Little Pill

Yesterday, I managed to drag myself out of bed in time to present my high-functionin' self to Dr A at 8:30am. It wasn't easy, not least because dealing with peak-hour public transport is enough to send the sanest soul into a decline. I HATE the train, the ones that go near my house are set up so that the seats are all along the sides, facing in - your paranoiac's basic nightmare. A friend of mine who works as a train security guard says it's due to the high level of crime and naughtiness on my train line - but I *think* she's joshin' with me. Anyway, the trains at that hour of the morning are chock-full of worker drones (um, hello, you used to be one, yes I know, now shut up, ok?) and I was paranoid I would run into someone from my old work. In a small town city like Perth that happens a lot. In fact, it happened last time I had an early appt with Dr A and I could just imagine the chatter back at the office "Hey, I thought L had a schiz-out and was in the funny farm? Well, I just saw her heading into the city and looked like she was going to work...does she have a new job?" Bummer.

Anyway. Anyway. Anyway... the appointment went pretty well, although I am mega-cynical of most of his shrinkish moves. He asked me about the job situation, saying I was "extremely well spoken and had the gift of the gab" (bless) and that I was "very skilled" (you got no idea honey). I just about managed to not roll my eyes in cynical acknowledgement of his attempt to bond my good self to him. We talked a bit about "Lost in the Mirror" a great book about BPD that was recommended by the fab Wandering Coyote . It's terrific, and one of the things the author discusses is the benefit of ritual and routine for the Borderline. I had already been planning to try and set up a daily plan for myself, getting up at a certain time, exercising, cleaning, homework etc, because I am really scared about becoming wedded to my bed hahaha. So Dr A and I gasbagged about what I might have in my ritual/routine, trying to strike that happy balance between tasks and fun.

Once I left there I was all fired up for the day and had a small shopping spree (wouldn't call it a binge per se...) and saw a movie (Duplicity - not bad. Clive Owen deliciously British). Then went out later with my friend Michelle, and we had dinner and saw another movie (Paul Blart Mall Cop - v. entertaining, Kevin James chubbily charming). Today, I managed to stick to my routine/ritual and got up at 8am (better than yesterday's 6am, ugh) and have been cleaning and writing and applying for jobs all day while listening to Taylor Swift. Even managed to get outside and sweep the patio floor and vacuum my dog's kennel (Michelle, no need to call the RSPCA now lol).

So here's the thing. And ain't there always a kicker? Yesterday I *finally* opened the Lovan box, pushed out a pill, snapped it in half and swallowed it along with my myriad other tablets and supplements. Lovan, for those not "in the know" is another name for fluoxetine, aka Prozac. Sometimes, apparently, SSRIs can start working immediately and in very small doses. But maybe I am just having a couple of great, energy-filled, productive fun days?? I am furious at the fact that it might be those god-damned chemicals that have given me the kick in the ass I needed to get out of bed and into the world again. Part of me hopes for a major slump, so I can go "hooray, the meds aren't affecting me, it's just a hypomanic state!!" It's nuts, clearly. I want to be well, but I don't want medication to help me? Where's the sense in that?? I'm just gonna have to go with it. Here's the confusing list of facts (for my own record as much as to entertain my beloved readers, so please forgive me!)

1. Finished my darn period four days ago, always a positive thing
2. Kicked my diet coke habit six days ago - traditionally a hard time, usually gives me withdrawal headaches and lethargy?
3. Could barely function four days ago, and now have energy to burn and a clear head
4. Two days ago started SSRI anti-depressant at 1/8 of the standard/highest dose

I don't know how much of this relates to my current mental and physical state!

I don't know if I'm just having a "good" week!

But I am DETERMINED to make the most of it, regardless.

Visual Cues

I'm considering doing one of these graphs each week and displaying it like a flashcard for Dr A, so he can better "assess" me. It's colourful. It occupied some of my day. I am trying hard to focus on the tiny, but brightly visible, sliver of hope still present at the top.

I keep thinking longingly of the activating qualities of fluoxetine. My memories of taking it (2000) are clouded by the intense migraine headaches I had at the time, which may or may not have been a side effect. I imagine myself lucid, energetic and focused...less "rejection-sensitive" (Peter Kramer, Listening to Prozac). My shrink was torn between prescribing an activitating SSRI or a sedating one (namely citalopram aka Celexa, Cipramil). He asked me to make the decision...ie: "would you rather turn positive behaviours ON, or turn negative behavious OFF?" How the %^$#$%^ would I know? I used to think the "right" medication (or the "right" relationship, job, pair of shoes) would do BOTH. Would make me turn away from cake and towards the gym. Would make me see beauty in the mirror instead of horror. Now... I seriously doubt the capabilities of medication. Been there, done that.

• Fluoxetine - failure.
• Sertraline - failure (admittedly after working for a couple of years)
• Mirtazapine - failure.
• Diazepam - failure.
• Venlafaxine - GROTESQUE failure.

Of course, these days I have a more accurate diagnosis and with that, the realisation that medication doesn't really help Borderline Personality Disorder the way it can help other mental illness. Basically, the way to work through BPD is therapy, continuing the CBT and DBT I have started. Dr A seems to think that the therapy might be "easier" with the help of fluoxetine, make the darkness lighter and the energy levels a bit higher.

I know I keep flogging this dead horse. It's what consumes me, when I'm not trying to decide what kind of cheese to eat lol. I'm fairly sure that once I get my disability/heathcare card (with it's associated discount on medications) I'll shuffle off to the pharmacy and fill the script. If only to deflect the questioning of the persistent Dr A. And I will take the tiny pill (or half), and try not to choke on the weight of my sliver of hope.

Surrender or Set Sail

This has been a dark week. I tend to have a hormonally challenged week every month (so rocket science there) and this is it. Which means I am glad I didn't decide to resume medication as the distinction between hormone side effects and chemical side effects could have been blurry. So now I have migraines, upset stomach, irritability and lethargy and no noticeable change of mental health. I'm thinking I will give myself until the end of next week before I start the new/old medication, as this week has not been a good litmus test of anything except the cosiness of my new bed sheets. I went to the gym on Monday, no exercise since then, and have only left the house twice in the last 4 days. But I am hopeful that this isn't a relapse or symptom-related episode. I think it really is just hormones.

I turn 40 next year and am seriously considering my options. I know there is a laundry list of reasons against having a hysterectomy, but quite frankly the argument of hormonal hell and mental instability just doesn't wash with me. It's what I have now, right? And I have to take the strongest contraceptive pill on the market just to semi-regulate my cycle, and the side effects and potential health risks of the Pill are not slight. I will never have children, physically can't (proven by 14 months of invasive, debilitating, expensive and ultimately fruitless fertility treatment) and really have no desire to. I know of a couple of women who chose to have hysterectomies in their late 30s and one even had the laparoscopic procedure, so the physical risk of surgery is lessened. I have plans for major plastic surgery next year, to correct the ravages of gaining/losing 80 kg (170 pounds), but may have to postpone that to pay for the insides to be fixed first. I also need to have some prolapses corrected (again, from gaining weight). Sometimes I wish there was somewhere I could check into and just have it all nipped, tucked, tidied and polished and then voila! Out I come all "fixed"...

Creative Spurt

This week has been great for me as far as the creative muse is concerned. I bought two discounted wall calendars (marked down 75% as it's almost 1/4 of the way through the year I suppose) and have cut them up, making a colourful piece of art for my bedroom wall. I was considering painting, but as the property is a rental (and my taste in colours can be somewhat LESS than "neutral" haha) I opted for some removable renovations. Below is the "before" wall, then the "after", with the third photo being a close up. The pictures are from "The Earth Below" calendar (satellite images of Earth taken by NASA) and an Australian Abstract Act calendar. Weird mix, I know, but they kind of work together - and I loved the colours. It's cheered my room up immensely.

I've also been working on an accompaniment to my comfort box (see yesterday's post). There were a number of things, important things that are central to my recovery, that couldn't be "boxed up" so I made a collage (thank you Jena for the inspiration!) which I will put up on my wall to remind me of all the things I love to do when I feel low. I tried really hard to use images without triggers/reminders, and nothing addictive (which ruled out shopping, eating, caffiene, alcohol, etc, etc). I'm happy with how it turned out, and hopefully I can get back into some other art and craft I've been planning and working on.

The downside of the week was yesterday's appointment with Dr A. He was extremely supportive about me looking for a different job, not only because of the social issues but also because I am bored with the job and do need a new challenge. However, he again pushed the idea of medication. I've been "med free" since 15 Feb (almost a month!) and although getting off the Effexor was tough, I think I am doing really well. So it bugs me that he wants me to go onto 10mg of Prozac, just to help me complete the CBT and to lift my mood. I've been honest with him, and admitted that I have some suicidal ideation, but nothing anywhere close to the horror thoughts and moods I had while ON medication. And although I sometimes feel depressed (like yesterday when I found out I didn't get the job I interviewed for - boohoo) and hopeless and lost, it's okay because I know what to do and I don't need to get up and go to work, I can just take my time to get through the day. I really don't think I need medication. And what's the POINT of such a stupid low dose anyway?? I hate the way I ALWAYS need to think I am right and know more than the doctors!!! But in this case I think I DO hahahaha! My compromise is that I am going to work hard on my goals and homework for the week, WITHOUT Prozac, and then at my next session I can discuss it more with Dr A.

I just know from experience and research that one medication tends to lead to another, and sometimes it's hard to know what are side effects and what are actual symptoms. Any advice or input gladly welcomed (:

The Drama Club

Dr A used a throw-away line on me on Monday, saying something about "Cluster B types" - naturally I have been obsessing and Googling about this Cluster B stuff, and found out that it's a category of Personality Disorder. Cluster B, the Erratic/Emotional/Dramatic PDs, includes Antisocial, Borderline, Histrionic, and Narcissistic. Suite 101.com (which as far as I can tell uses "laypeople" to write non-fiction articles, I guess kind of like Wikipedia? But it seems to pass itself off as more "scientific"...PLEASE jump in and correct me if I am wrong!!) seemed to be going for the chuckle element as it subcategorises Cluster B as THE DRAMA CLUB.

Am I the only one pissed at that?? I know, I know, I'm a hypocrite after going on yesterday about BPDs being erroneously categorised as humorless HA! But it seemed like a stupid description for two reasons:

1. "Drama" being used these days to go with Queen, seems to intimate a choice of overacting or acting out...rather than having a genuine inability to regulate emotions.
2. And "Club"...don't get me started...oh, okay then, start already HA! I seem to remember having to APPLY to join the Drama Club at school, as well as any other damn Club I wanted to be a member of. While I am proud to be part of Cluster B (or whatever) and I am determined to make the best of everything life throws at me, I don't remember filling out the application form for Borderline Personality Disorder. How anyone would call it a CLUB is beyond me.

The irony is not lost on me people, fear not. I'm coming across as humourless - and I'm not! If it was me, or another "sufferer" of BPD (and man I hate calling it "suffering"), saying "hey, come join my drama club", I would be laughing louder than anyone. But Suite101.com seemed to be adding itself to the long list of purveyors of "stuff-n-nonsense" about Personality Disorders.

In Effexor Withdrawal News, the electro-pulse disco is still raging in my head. It's the hardest sound effect to describe. The thing it reminds me of the most is the noise the Bionic Woman made when she jumped extra-high... I found a .wav file here http://members.tripod.com/tiny_dancer/70bionic.wav for anyone who is curious! The noise comes and goes in my head, and it physically feels like my ears are trying to "clap" together. I swear it's true lol. I can also only stand upright for half an hour at a time, and sleep for most of the day. But the side effects of the withdrawal have been almost all physical. I am keeping a close eye on my moods and emotions, but so far so good. I think the fact that I was on a fairly low dose, for a short time only, has meant that my come down has been fairly mild. I have ramped up my Calcium, Magnesium, Fish Oils and Vit E and have been slugging down water. Dr A suggested 3 litres minimum per day.

Darth Vader, Chloe from 24 and Tony Soprano

Apart from being moody and melancholy, the three fictional characters in the title of this post have all come under suspicion as having Borderline Personality Disorder. I know there are more, a lot more, but those three came up in a Google Images search I did for BPD. I wanted to change my Facebook profile picture to something suitably dark and depressive. I ended up with a picture of Lucy from Peanuts in her 5c Psychiatry booth (see above).

I'm finding it hard to posit myself in the BPD spectrum. If you think about the 3 characters listed above, it's hard to remember them smiling, laughing, or experiencing genuine mirth that wasn't at the expense (often physical painful lol) of others. I consider myself to be pretty damn hilarious and light of spirit...sometimes...and most of the things I've read and seen about BPD seem to focus on the dark side. Old Darth should be the poster child... Maybe that's going to be where I find my niche in all this psychiatric BS, to be the Borderline Personality Comedienne. There were a couple of cartoons I liked in the BPD Google Image library, which I will probably post on here sometime. One was a guy buying a t-shirt that said "Ask Me About My Borderline Personality Disorder" and his friend asks "What's on the back?" and the guy shows him that it reads "Or I swear to God I'll kill myself". Fark I thought that was hilarious. Does that mean I DON'T have BPD???? Luckily I've still got my sense of humour and my self-relflexivity...I think those are more successful weapons against mental illness than these darn drugs.

Speaking of which...

Dr A saw me last week and I was super agitated and cranky. He recommended I go in for an inpatient stay in the PC (Clinic) to get me off the Effexor (aka "SideEffexor"). Two weeks. Uninsured, costs about $2500 a week. As much as I would love to leave the comfort of my kingsize bed, my stocked fridge, my computer and my 2 cats (yeah right), I thought there had to be a better way. Cut a long story short, I am in Day 2 of Zero Medication. I know, it's crazy to just stop. To be honest, I took 150mg, then 75mg for a few days, and now am on nothing. No Valium, no mirtazapine, no EffexorXR. The withdrawal is nowhere near as bad as the freakin drug, which was amplifying everything and making me nauseous and headachy. But it's there... some of the electro-impulses I've read about, and the sluggishness. I saw Dr A today and he had a minor hissyfit about me going pretty much cold turkey off the meds, but had to agree that I am "noticeably" less agitated and clearer. We are keeping our fingers crossed that the withdrawal stays at this manageable level... I hated the Effexor SO MUCH. Zoloft was nowhere near as weird for me, it blunted me but no excess anger or mania or mood swings. Dr A asked to see my mom today in the session, to help her spot any "withdrawal" psychosis, etc - as I live with my parents currently I guess he thought she was the person who'd have to ring the psych unit if I flipped my lid haha. Anyway, having her in the session INFURIATED me (so much for the anger being subdued haha). I hate sharing lol!! I didn't want to emote or be honest with Dr A with her there, and I know that I could easily get fixated on the paranoid delusion that they are both against me. Intellectually, I know that's total BS. But the feeling was still there...

And They Say Information Is Power...

All I've done since my visit with Doc A last week is read about SSRI medications, anti-psychotic medications, Cognitive-Behaviour Therapy and Borderline Personality Disorder. It's made my head spin. Okay, so the head was already spinning due to the depression, anxiety, impulsivity and emotional irregulation haha. But now it's even worse! The first doctor to suggest to me that I had Borderline Personality Disorder (BPD) was during high school, and it's been mentioned in an offhand way since then, but never with any serious attempt to diagnose or cure. Doc A seems pretty certain, and all my reading has confirmed that I have all the recognisable symptoms.

• Turbulent and idealised relationships
• Impulsivity in self-damaging ways (binge eating *who me???*, shopping, stealing)
• Difficulty compromising or viewing "grey areas"
• Intense outbursts, often short-lived, of anger, depression, anxiety

One of the downsides of this diagnosis (and there are many, let me tell ya), is that traditional methods of treatment for depression often don't work, which could explain why I've had no relief from my SSRI (Zoloft) recently, and the new one Efexor is not much better. I'm so wary of SSRI medications now, having just finished the book Dying For A Cure - a biography by an Australian woman who was diagnosed with a range of mental illnesses, and prescribed a number of harmful medications, after presenting with mild postnatal depression. Basically, the meds made her very sick, and encouraged her to self-harm... thankfully she is now off medication and entirely well.

I don't think I was prescribed SSRI antidepressants for nothing. I have a large number of stories from the age of about 5 - 25, depicting varying instances of self-harm, depression, anxiety and hypomania. The medication didn't really change those thoughts or feelings, but seemed to "numb" me toward them. BPD has one major "cure" or treatment available in Perth, which is a 2 week Cognitive Behaviour Therapy course. By all accounts it's hard work, and intense, and involves yucky touchy-feely type "group work" hahahaha. Sharing and bonding and all that hippy junk!! But it will be worth it if I can learn how to regulate my emotions and moods and maybe start to live life on an even keel.

I'm shallow enough to worry about the effect of medications on my weight loss. Efexor is not known to be majorly fabulous at combating depression, BUT it supresses the appetite. One of my other on/off meds is Mirtazepine, an old-fashioned trycylic antidepressant, which can cause weight gain. I know, I know, I know...I shouldn't even care about that side effect. But damn it, I do. I've worked hard and paid well for this weight loss surgery, and I want it to continue working for me. Call me shallow...Call me Ishamel...Don't call me the white whale LOL!!!