Natalie is doing better everyday! She has decided she loves fish sticks and wants them every meal; I do mean, breakfast, lunch and dinner. Why, I have no idea. Now, I do not let her eat them every meal, but I am okay with at least once a day. I am just glad she is starting to eat more. In fact, today has been the best day so far. She did not eat breakfast, but had a great lunch, dinner and a couple of afternoon snacks. I just need to get some weight on the tiny little thing. She is like holding a skeleton right now.
We did have an appointment with our pediatrician this week. Natalie's oxygen was 79, which is not bad for right now. Her oxygen should continue to increase over the next year. I can't wait until someday, I can type she is in the 90s, but I will be patient for now.
We had xray and labs today at the hospital. Natalie got to wear a nice little mask to keep the germs away. She was not a fan, but dealt with it. Her labs went better today than they have in a long time. We had one stick and the before I knew it, two tubes were full. Normally, we have more than one stick and it takes forever for her to full one tube.
Ready for the big news...drum roll, please....Her chest xray looked great! Dr. Scott, our pediatrician, called Dr. Zellers. Zellers called and said Natalie can stop on one of her medications and can cut back to once a day on another. That means, we are almost back to our normal medications (1 aspirin and enalapril twice a day); she will take these the rest of her life.
We will go back to Dr. Scott in a couple of weeks for another check up, but right now she is doing great and gaining more strength.
Thank you all for your support and prayers, they are working!
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