It's Beginning to Look A Lot Like Fun*Run Time

It's ALREADY that time of year again: The ADAPT Fun*Run for Disability Rights is April 22nd 2012. Maryland's fundraising goal is $8,000 this year. Yes, that's right, $8,000

Donate $1! Donate $10! Donate $100! Donate $1,000! JUST DONATE so we can FREE OUR PEOPLE! http://adaptfunrun.org/runner.php?id=7 I thank you very much for your support!
Showing posts with label protest. Show all posts
Showing posts with label protest. Show all posts

Tuesday, July 19, 2011

You Know You're a Life Long ADAPTer When...

A quick one this time...


So I get off the elevator for my PT appt and one of the people who work at the desk, he's the scheduler person, sees me walking towards there to sign in and says
Uh oh. Here comes trouble...
To which I say
You have no idea how much trouble I am. I protest the government. My friends handcuff themselves to the White House fence... and I stayed around the corner :( because my parents are stupid and will un-cosign my lease if I'm not careful :( ...
What are we protesting? Medicaid reform. Or rather stupid Medicaid reform. We're the anti-block grant brigade.

He seems like a cool guy, although I've only known him 4 weeks. I wonder how he picked up the vibe?

Saturday, February 26, 2011

ADAPT Activists Storm Wisconsin GOP Headquarters

Image

A side of the Wisconsin Protests not many have heard
It is small as protests go these days in Madison. A line of advocates, activists, and people with disabilities, some in wheelchairs, maneuvers its way through the slush Thursday, past honking horns and over puddles, from Capitol Square to a squat, nondescript office building at 149 E. Johnson. "Our homes, not nursing homes!" the protesters shout. Bringing up the rear on crutches, his right leg amputated below his knee, is John Nousaine. He has driven down from Superior to join this mission.

The line of 25 or so protesters closes in on its target: the state Republican Party headquarters. While an advocate holds the door open, a stream of motorized wheelchairs twists, turns, bumps and backs its way through the building's narrow halls until it comes to a halt in a small lobby right outside the office of the party's startled executive director, Mark Jefferson. A few protesters and a service dog roll right on in to Jefferson's office, past several glass and brass elephants and an autographed Badgers football, and up to his desk.

"What's this about?" he asks.

"It is about our lives!" says Dane County Board Supervisor Barbara Vedder, who was paralyzed in a car crash years ago and gets around in a wheelchair.

It is around noon Thursday, the start to what will be a two-hour occupation of the state GOP headquarters, the latest salvo in a battle by advocacy groups to get word out about Medicaid provisions buried in Gov. Scott Walker's budget repair bill that would, they say, allow his administration to gut the public health programs many of them depend on.

It is also a kind of protest that Madison has not yet seen. Over the past two weeks there have been all kinds of demonstrations in the Capitol. Firefighters have marched with bagpipes. Family doctors have written medical excuses from street corners. Break dancers have slammed the marble in the Rotunda. Yoga instructors have greeted dawn with chants. Children have brought their stuffed animals and sleeping bags to the statehouse for sleepovers. But nobody had ever just marched right into the GOP headquarters and tried to take over, Jefferson says.
Activists tell him they are there because they are desperate.

They believe that changes to Medicaid programs in the bill, including provisions that will hand unprededented powers to the Walker administration to circumvent state laws and normal legislative processes in revamping the public health plans, could lead to cuts in their benefits that will force many of them back into the institutions that once housed most people with disabilities. And they don't intend to let that happen without a fight.

"Are you even aware of the MA provisions in the bill?" Vedder asks. "We are able to be in our home with jobs and be productive members of society because of Medicaid. We don't want to be put into nursing homes. This budget bill is not repairing us. It is destroying us!"

Jefferson asks what that has to do with him. "I'm just an operative," he says. Protesters explain they won't leave until he arranges a face-to-face meeting with Walker. Jefferson says that the Governor is too busy. "It's a very trying time up there," he explains to the crowd. "He's in the middle of a budget crisis."

"We're in the middle of a life crisis!" Vedder replies.

Organizers working for Wisconsin ADAPT and Southeastern Wisconsin ADAPT, twin activist organizations devoted to keeping people with disabilities out of institutions, had been secretly plotting the surprise takeover for several days in hopes that their action could finally grab the spotlight for people with disabilities and on Medicaid, whose plight has been largely overshadowed by debate over labor issues. "We're not leaving until we get something!" several in the group shout.

"What you've got is an ear," Jefferson says. "We haven't allowed folks to just come in and take over before without an appointment."

"Thank you. That's real sweet," mutters Roxan Perez of Milwaukee, who needs to use a motorized scooter to get around because she has multiple sclerosis.

Over the next hour or so, the two sides try to listen to each other. Several of the protesters tell Jefferson why they think cuts in Medicaid would hurt them. His response is to say that the bill, by getting rid of collective bargaining, would "free up local governments to prevent some of these cuts from happening." The crowd doesn't buy it. "Why are you pitting people against each other! That's crazy! That's bull----" says Jerome Holzbauer, a Milwaukee retired school teacher who has earned a Ph.D in rehab psychology and has cerebral palsy. "You're going after the most vulnerable!"

A woman asks how Jefferson and the Republicans and others with wealth are "sharing the pain."

"This has a lot of people on the public dime," he says, gesturing to the crowd in his office. On the other hand, he works in the private sector, he says, which is also hurt by the economy because "we have to rely on fundraising to keep our doors open."

Jackie Turner asks how he justifies policy changes in the bill that would hand the Walker administration the power to make unilateral decisions about Medicaid programs, eliminating lawmakers and people like her from the process. "How could you support something that doesn't require legislative and public input?" asks Turner, who lives in Monroe in Green County and has been a paraplegic since a car accident left her in a wheelchair decades ago. "How can you support that? Please answer that!"

Jefferson replies that he understands that "department bureaucrats making cuts gets people upset," but that the provision has precedent: the Department of Natural Resources has initiated similar rule changes. "DNR is animals, fish, squirrels. We are humans! Do you understand the difference? Yes or no?" says Joe Kunz of Madison, who has muscular dystrophy, from his wheelchair.

The protesters are determined to speak, though for several speech is difficult. John Donnelly has cerebral palsy, and his face twists with effort as he tells a reporter why he has come in his wheelchair to the protest. He depends on Medicaid benefits, his friends help explain, to participate in community based programs and to live in his own apartment, with home aides who help. It takes several seconds for Donnelly to get each word out, but he does not give up. "I'll ... die ... before... I go... into one of those facilities!" he finally says.

To read the rest of the article (this was only half of it), click here. 2 other articles here and here.
I went to my local MoveOn rally today in Annapolis with two other Maryland ADAPTers. Anyone else go to one?

Sunday, February 6, 2011

I Can't Post One Without the Other

From The Maryland Reporter April 5, 2010. Somehow it never got posted here.

Disability Advocates Demonstrate for Tax Hike


A small group of people with developmental disabilities demonstrated in the State House lobby Monday night, chanting “10 cents makes sense.”

The group was frustrated with failure to pass a major hike in the alcohol tax to help pay for services for the disabled. Alcohol taxes, now about a penny a drink, have not been raised in more than 30 years.

Senate President Mike Miller and House Speaker Michael Busch have said for months that the legislature would enact no tax increases of any kind this year.

At the end of the video, Sgt. Larry Barnes, a state trooper who is the sergeant-at-arms for the House, told the group to quiet down, but he promised to try to get them in to see Busch and Miller. According to Busch’s office, the speaker later went out to meet with the group, but they had already left the building.

Small Group Protests Over Possible Medicaid Cuts

From Brian Witte, AP, January 17 2011 Photo & Video from WBAL Radio.

ImageDisabled Maryland residents called on the governor on Monday to avoid budget cuts to Medicaid that they fear could seriously damage community-based support services.

About 10 people held a brief rally in front of the marble staircase that leads to Gov. Martin O'Malley's office inside the Maryland State House, down the hall from the Maryland House of Delegates and the Maryland Senate. The state is facing a $1.6 billion shortfall for the next fiscal year. The rally was held four days before O'Malley is scheduled to disclose a budget proposal he says will fill the hole entirely with cuts.

The participants chanted: "We want O'Malley," "Don't cut our services" and "I'd rather go to jail than die in a nursing home" during a protest that lasted about 10 minutes. Participants are members of a grass roots disability rights activist group called Maryland ADAPT. They say Medicaid cuts could force disabled people from communities into institutions.

"We wanted to come out and share our concerns about what may possibly happen," said Floyd Hartley, who spent three years in a nursing home before finding out about a Medicaid program that enabled him to move to a home setting. "We're hoping that they don't happen, but we're here to interject to the governor that these cuts can be detrimental to many individuals within the state."

Few people were in the building at the time of the rally. Lawmakers are not scheduled to gather for session until 8 p.m. O'Malley was in Baltimore commemorating the Dr. Martin Luther King Jr. national holiday and volunteering at several events marking a day of service.

O'Malley, a Democrat, has emphasized that his proposal will be the beginning of a dialogue with the Maryland General Assembly about how to handle what is expected to be a difficult budget year due to the evaporation of federal stimulus money that helped the last two years.

O'Malley has said he will keep an open mind about any new tax proposals, but he has said he will not include any tax increases.

The Maryland Department of Health and Mental Hygiene made up about $8.9 billion of the state's budget last year. About 70 percent of that is in the Medicaid program, which comes with a large match in federal funding and provides services to about 1 million people in the state.

O'Malley is scheduled to make his budget proposal public on Friday.

The article appeared in the following places. One of these days I'll link to everything.

WTOP - Baltimore Sun - Bloomberg News - Delaware Online - Forbes - Connecticut Post - MSNBC Business - Canadian Business - Business Week - Yahoo Finance - Greenfield Daily Reporter - Darien News - Daily Finance - WUSA - WJZ - WBAL Radio - Times Union - Beaumont Enterprise - The Star Democrat - Greenwich Time - Delmarva Now - News Times - Stamford Advocate - Daily Journal - The Republic - ABC 27 - MD Daily Record - Frederick News Post - Cecil Whig - WBOC TV - Media Dis&Dat Blog - WBFF - WAMU - Fox5DC - CNBC - Pharmacy Choice - Maryland Reporter

What will we be up to next? Just wait and see...

Monday, November 29, 2010

Have You Been to Jail For Justice?



Thanks for posting Cilla! Anyone want to transcribe for any hearing impaired activists out there?

Saturday, December 12, 2009

More Button Experiances

I'm starting to feel like Eva, although I don't have a camera hidden on my chair :-)

It's a weird feeling to realize that someone is staring at you without actually staring at you. I'll get used to it one of these days. Yesterday in the elevator at the mall I noticed a group of adults with intellectual disabilities being herded around (link to Ashley's Mom, and oddly enough in my case as well the caretakers were african american women). We all squished into the elevator to go down from the 3rd to 2nd floor. All of a sudden I noticed a caretaker that was next to me staring at my lap. OH! MY BUTTONS! I realized. I moved my arm so she could get a better look. Logically that's what I do now when someone's staring at my lap. I move my left arm out of the way and/or readjust my purse so that the person can get a better look. This person didn't ask any questions or make any remarks. We got out of the elevator and I went on my way.

ImageI rearranged my flair after I got a new button at the Action Annapolis meeting Tuesday. It's yellow and black and says "HUMAN RIGHTS in MENTAL HEALTH." This evening I was fumbling with my purse looking for my debit card so I could pay for my groceries and the cashier says "I like that button; human rights in mental health."

So I told her about the rally and we briefly spoke about the budget cuts. Then I had to sign my receipt and she says ever so randomly "You know they used to beat people who were left handed." [fun fact for the day, 90-something percent of all people with CP are left handed] I replied that they used to tie that hand behind your back, and then asked her if she was a psych major. Who else would be that engaged? "That," she said "and I have both personal and professional experience." I don't remember if I said anything but I gave her an 'I hear ya sista' nod. As she was handing me my bags she said "It's so expensive, and I even have insurance." That of course got another nod from me as well as a "yeah..." in an 'I hear ya sista' tone. As I rolled away I told her the date and time of the rally, but really, how many people are getting up that early to schlep to Annapolis? She told me to tell her how it goes, and hopefully our paths will cross again so that I can. I don't know her shifts. But if we do, I think I'll invite her to On Our Own.

It's nice to really connect with people, and who knew all you needed was a button (or 6)? A guy even stopped me in the lobby on the way back up here...

Saturday, November 7, 2009

Activists, Wear Your Flair!

ImageIt all started when I went down to DC and attempted to lobby congress. I didn't get to lobby congress, cause we got there when the whole thing was over, but we ran into Yoshiko Dart on her way out and she gave us each a leftover Community NOW button. I somewhat absentmindedly stuck it on my purse as I didn't know what else to do with it and didn't want to lose it. It's cool. It's also impossible to read what any of those buttons say over on the right, so it is the yellow one and it says Community First Choice Option on the top, CLASS Act on the bottom (both smallish) and Community NOW pretty big in the middle.

The next 2 buttons (well, a button and a pin) came in the mail maybe 3 weeks ago. A friend got them for me in Atlanta. The pin is a small orange ribbon symbolizing CCA awareness and the button is white and says NOTHING ABOUT US WITHOUT US with the ADAPT free our people dude. The pin is between/above those 2 buttons. I got those and stuffed them in this backpack/purse thing I use, not knowing what to do with them.

Lastly, at the ASAN protest I got a black pin with a rainbow brain that says honor neurodiversity. I was wearing it throughout the protest and would have also worn NOTHING ABOUT US WITHOUT US if I'd known we'd be chanting it. I'd had it with me, but it was in the car...

So then I was like I have all these buttons (somewhere I also have an orange rectangle COMMUNITY CHOICE ACT NOW button I have to find) what in the world am I supposed to do with them? A close friend has all of hers around the brim of a hat, this guy I refer to as Kansas Larry had them all over a vest when I met him at the action last April. NAH. Not for me. But you see I already had this one purse with a button on it. Why not add the rest to flair it up? [confused what flair is? watch the movie office space]

Guess what? 2 times in a week someone has asked me about my buttons. Initiated conversations without me having to feel like I'm getting in their face. #1 I was leaving a Halloween party last Saturday (after just having flaired it up) and as I was putting my coat on someone saw my buttons all over out of the corner of her eye. She couldn't even see what was on them, but "I see you have all these buttons. Are you an activist?" Unfortunately I was running to catch a paratransit ride I would have missed had I really gotten a chance to chat with her.

Then today I passed through Barnes and Nobel. A friend's birthday is on Friday (Yes, Friday the 13th) and suddenly I had an AH HA moment about what to get her. An employee asked me if she could help me find anything. I didn't need help as I got her something I already have so I knew where it was, and didn't notice she continued to look at me. "I'm Sorry," she said. "I was just looking at your buttons." I moved my purse so she could get a better view. "I really like the honor neurodiversity one." In my head I wondered what her story is. Who has ever heard of neurodiversity? But I decided not to pry into her business and answered "I got it last weekend at a protest. I went to DC with a bunch of people who are on the autism spectrum to protest Autism Speaks." That always gets people's attention. Say you were protesting Autism Speaks and you look like the bad guy. Say autistic people were protesting autism speaks and you get a puzzled look and a probe for more information. I explained two of the points and let her get back to work.

So activists, WEAR YOUR FLAIR! Wear it everywhere you go, like it was an afterthought, and maybe you forgot it was there. Don't try to bring attention to it or you'll look obnoxious. Maybe it's inappropriate to have flair around at work, maybe it's not, but there's no excuse to leave your flair behind when you go out to dinner, the movies, or to run simple errands. Guys, don't have a man bag? A jacket perhaps? Activists are always looking to educate and it's just that easy.

Friday, November 6, 2009

Mad Pride, Medication & Emotional Support Animals

It all started at the very end of my shrink appointment Tuesday. I'm going to come right out in the open and admit that I've been having serious compliance issues with my meds for a very long time now. So she says (in a non threatening way, completely in passing) "Maybe I should threaten to not treat you. It seemed to work the last time." To which I said "What if I went all mad pride and had a strong philosophical belief against taking meds?" Also, I disagree with her in that although it did work it was very temporarily. I left it at that as I was walking out the door. But I didn't end the thoughts in my head. I chewed on it for hours. I have a stop forced drugging logo on my right sidebar (which leads to http://www.stopforcenow.org ). And I believe that. I don't believe in treatment by way of coersion, which, if I thought she was even the least bit serious, that would be.

I am pro-choice on the medication front. I agree with the Icarus Project that people need to do what works for them. I don't agree with forced treatment. I don't agree with conventional medical beliefs that seem to say that there is a right and a wrong way to cure this "disease," probably because I very strongly believe that I do not have a disease. I don't want that stigma placed on me. In no way am I saying that anyone I come in contact with personally has placed this stigma on me (well not entirely true, there is one person); I feel I need the disclaimer. It's society at large that does this.

I remember the first time I was decently suicidal. I was shrink shopping and having admitted the extent of my noncompliance issues in the past was told by every single one of them that they refused to see me unmedicated. I don't agree with that and in fact now that I'm getting involved in human rights I find it unethical. From what I understand (I got this from an episode of Private Practice) the American Academy of Pediatrics has taken a stance that Drs should not abandon patients whose parents have chosen not to vaccinate. Where is this different? To me, choosing not to vaccinate is dangerous in that it is potentially putting hundreds of children at risk for death from a measles outbreak. Especially children who are imunosuppressed. Choosing not to medicate does not carry that risk. It just so happens that I begged for drugs anyway. I've never really wanted to die (similarly to this, but different in that I've never experienced trauma) so I'd rather not feel like I do. But this was my choice. Again, I am pro-choice.

Medication is just one tool that a person can take or leave when seeking to achieve their own version of balance. But there are many others, like dogs. I've got dogs on the brain again. I don't know how they came up on the drive back from DC on Saturday, I think K brought it up, but we both believe Autism Speaks' gazillion dollars would be better spent on buying kids autism service dogs. We also believe that human health insurance should pay for service dogs as well as vet bills for service dogs at the same reimbursement rate as human doctor visits and/or DME. The pay for powerchairs and powerchair repairs. By extension...

ImageDogs also came up Monday night with a friend of mine and in my train of thought about Mad Pride. I suspect that if I had a dog and if I was running and if I was doing other things I know I should do I would not need medication. I do not know for fact as I've never had a dog, but from Oreo I do know I would at the very least be able to lower my dosages. However, at the moment I do not have a dog and I do not run and so regardless of tactics I happen to agree with absolutely everyone that I should be taking my meds right now.

[image description: 4 puppies in the grass]

These periodically reoccurring thoughts coupled with Monday nights conversation prompted me to finally look up what a psychiatric service dog does. How is one different from a mobility / seeing eye / hearing /seizure / autism dog? What I found is that there is such a thing as an emotional support animal. Emotional support animals (ESA) are NOT trained anymore then a regular pet dog but with documentation from a doctor or ANY licensed mental health professional you would be covered by the federal housing laws, dept of justice, and dept of transportation. (links to Bazelon Center for Mental Health Law) So you cannot be discriminated against when renting or flying on a plane. However you are not covered under title III of the ADA, public accommodations. So you can't bring an ESA into a supermarket for example. For that you need a trained psychiatric service dog.

What is the difference between a trained psychiatric service dog and an ESA? What's distinguishing? Read this GREAT article. It's something to think about...

Wednesday, November 4, 2009

Wordless Wednesday

A picture from the protest and some linkage to more press

ImageFrom WAMU, the local NPR news radio Locally-Founded Autism Group Protests DC Walk for Autism

From The Hilltop, Howard University's Student Newspaper Autistic Plea Less Pity

Saturday, October 31, 2009

Just the Story For Now...

and the commentary later. I didn't get a soundbite (wasn't expecting to) but you can see me at 1:29. From ABC 7 and News Channel 8 in DC:



Autism Walk on National Mall Stirs Controversy

WASHINGTON - Thousands of people converged on the National Mall Saturday for a great cause -- fighting autism.

Several protesters, many of whom also fall on the autism spectrum, used the annual "Walk Now for Autism" event to point out the flaws with the event sponsor.

Michelle Parris came out the Mall ready to walk 2.5 miles for her son Miles. "I just want other people to not have to deal with the same difficulties that my son has dealt with," she said. "If there's a way that we can end it that would be great."

Her cause, along with thousands of others, is for autism, a neurobiological disorder that affects one in 150 children.

"My little boy who turns 8 in two weeks is mildly autistic and I have many friends who have children who are autistic," said Yitbarek Arefeaine.

Early intervention was key for 7-year-old Ahadu Arefeaine who is now making great progress through speech and occupational therapy. He sometimes even teaches his parents a thing or two.

"He can tell you everything you wanted to know about a bee -- more than I ever knew," said Arefeaine.

The annual walk sponsored by Autism Speaks drew families and supporters from all over the D.C. area. Together they raised closed to $700,000.

"This money goes toward research and autism awareness," said Joe Galli, chair of the D.C. chapter of Autism Speaks. "These kids are struggling to get the treatment that they need."

On the other end of the Mall, protesters held an event of their own questioning the practices of Autism Speaks.

"They use fear and stigma and pity to try and raise money off the backs of our people," said Ari Ne'eman, president of the Autistic Self Advocacy Network.

The group says the money raised Saturday and at future events won't all go to help those with the disorder. "Its funding goes overwhelmingly toward things like genetic research to create a prenatal test to end our existence," said Ne'eman.

The protesters were set up where they could be seen, right near the path of Saturday's walk. They said they did get some backlash but most people were receptive and wanted to learn more.

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