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🎥 Our new Community, Care, and a Cure video series is live! See how your support is changing lives for people living with myotonic dystrophy.
💛Donate now: giving.classy.org/campaign/62279…
👇Watch the stories below:
Myotonic Dystrophy Foundation
3,582 posts
Myotonic Dystrophy Foundation
@MyotonicStrong
The world's largest patient organization focused solely on #myotonicDystrophy. Our mission is Community, Care, and a Cure.
- 🧬 #MyotonicDystrophy is a rare, inherited disease that affects multiple systems. A gene mutation prevents proper functioning. 💚 Spread #myotonicDystrophy awareness on September 15th and help us work towards a cure! 🌟 Learn more at: myotonic.org/international-…
- 🌍💚 September 15th is International #MyotonicDystrophy Awareness Day! 📢 Use your voice to increase #myotonicDystrophy (DM) awareness with our brand new Social Media Toolkit. 🎉 Learn more at: drive.google.com/drive/folders/…
- Global Alliance of 57+ #MyotonicDystrophy Focused Organizations Unite to Raise Awareness on #RareDiseaseDay2023! We proudly celebrate the remarkable strength & resilience of the international myotonic dystrophy community. Read the full press release at myotonic.org/global-allianc…
- Your generosity today can change the future of families living with #myotonicDystrophy! 🌍💚 Benjamin Reynolds', a father of two, shares the realities of living with DM and his hope for the future. Together, we can change the future for those living with DM. Donate today at:
00:00 - Happy International #MyotonicDystrophy Awareness Day! Join MDF and special guests, including members of the Global Alliance and singer-songwriter Eric Hutchinson, for an hour of celebration and education at 12 PM Pacific! Start raising DM awareness at myotonic.org/international-…
- Have you seen the official logo for #InternationalMyotonicDystrophyAwarenessDay?! The Global Alliance is proud to announce Alexandra Leboeuf as the winner of the International Myotonic Dystrophy Awareness Logo Design Contest! Learn more & get involved! myotonic.org/international-…
- Help change the future of myotonic dystrophy! In honor of #RareDiseaseDay join the global alliance declaring September 15th International Myotonic Dystrophy Awareness Day! Read our joint press release to learn how you can get involved: myotonic.org/global-allianc…
- 2023 MDF Research Fellowship Applications due September 9! MDF offers two-year Doctoral and Postdoctoral Fellowship awards for research focused on improving treatment, care, and support of people living with #myotonicDystrophy. Read the full RFA at myotonic.org/myotonic-dystr…
- .@Arthexbiotech Receives IND Clearance from the US FDA to Initiate the Phase I-IIa ArthemiR™ Trial of ATX-01 for #MyotonicDystrophy Type 1. Read the full announcement at: arthexbiotech.com/post/arthex-bi…
- #MDF is pleased to announce the publication of the first-ever Consensus-based Care Recommendations for Congenital and Childhood-onset #myotonicDystrophy Type 1 and #myotonicDystrophy Type 2 in Neurology Clinical Practice. @NeurologyCP #CareAndACure myotonic.org/mdf-publishes-…
- 🌍 Today is the 4th annual International #MyotonicDystrophy Awareness Day! 📢 Share your story to help the world understand the issues faced by the DM community. 💚 Learn how your voice can help improve care and change the future of DM: myotonic.org/international-…
- We're excited to announce 3 new partners have joined the Global Alliance for #MyotonicDystrophyAwareness! @ask_bio, @jacksonlab, and the RNA Institute at @ualbany! Find all our partners and learn how your organization can get involved at myotonic.org/international-…
- Today we celebrate International Myotonic Dystrophy Awareness Day with our amazing community and Global Alliance partners around the world! Visit myotonic.org/international-… to help raise DM Awareness. Together we can change the future of #MyotonicDystrophy !
