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Today, I am 45!
Thank you, thank you, thank you @iamalsorg for this incredible surprise. So lucky to have you all in my life!
Brian Wallach
13.3K posts
Brian Wallach
@bsw5020
Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease. #ALSisHere #SoAreWe
- If I get 1 viral tweet in life I hope this is it. My wife married an athlete, who had limitless energy and was a true partner. Then came ALS and she had to dress, shower and care for me. She has borne these burdens with incredible courage and strength. I love you @sabrevaya.
- My oldest daughter was 2 when I was diagnosed with ALS and given six months to live. One of the goals I set then was to be strong enough to hold her hand on the beach when she was 5. She turned 5 this week. And today I held her hand on the beach.
- Made it! 42!!! And while ALS has changed a lot, I still think I look pretty darn good.🥳
- In my 30s I got married, had 2 daughters, worked in the White House and as a federal prosecutor, ran a 5:30 mile, was diagnosed with ALS and told I would die within a year. I’m still here, still smiling and my 30s ends tomorrow. Cheers to this amazing thing we call life.
- I joined a gym today. Normally that is not news. But when a guy 2.5 years into his fight against ALS joins a gym because he sees true hope for our fight in 2020 and because he wants a front row seat to that revolution, that—that is worth a tweet.
- Turns out I can still clean up ok. Not today ALS. Definitely not today.
- Tonight my 3 year old saw my pills on the table. She asked if she could help me take them and I said yes. She then picked them up, 1 by 1, placed them in my mouth, and waited for me to drink water and swallow. We did this 21 times. I fight ALS for her. Good night moon.
- If I can vote while receiving an infusion and living with a currently terminal illness, what’s your excuse? #VoteHopesNotFears
- My 5 year old’s friend asked her recently why her dad didn’t pick her up from school. She explained that I have ALS and it would take me forever to get there. So today I surprised her and picked her up from school. Her reaction was e.v.e.r.y.t.h.i.n.g. (sound on).
00:00 - I have not climbed more than 1 stair in almost a year. Yesterday, with help from my amazing caregivers I went down 4 and then back up 4 more. #grateful
00:00 - I have ALS, a currently fatal disease. I use a wheelchair to get around. I can barely speak. And yet, I am beautiful. I am strong. My words have more power than ever before. Good night moon.
- Yes I have ALS. Yes it is currently 100% fatal. But I am still very much alive.
- This pic is from 2017, about 5 months after my diagnosis with ALS. Now, I look different. I wish like hell I still looked the same. I don’t. I do, however, still have my amazing family and friends and am alive. I am grateful beyond words for those. Good night moon.
