Muscular Dystrophy Association

@MDAorg

MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.

Nationwide

linktr.ee/MDAorg

Joined June 2009

Muscular Dystrophy Association
@MDAorg
Mar 30
📢 Big news for the SMA community: The FDA has approved a high-dose SPINRAZA regimen for SMA—another major step forward in care. Developed by @biogen, this milestone builds on decades of MDA-supported research. Progress keeps moving 🔗 mda.org/press-releases… #SMA #Research
FDA Approves High Dose Regimen of SPINRAZA® for Spinal Muscular Atrophy, Reflecting Progress Made...
From mda.org
Muscular Dystrophy Association
@MDAorg
Feb 26
MDA is grateful to our Strength of Life Sponsors: @argenxglobal, @biogen, @BridgeBioPharma, @Novartis for their continued commitment to bringing the #neuromuscular community together at the 2026 #MDAconference. ➡️Register today: mdaconference.org
Muscular Dystrophy Association
@MDAorg
Feb 24
Family caregivers are essential to the neuromuscular community. Join MDA Advocacy on 3/2 at 12 PM ET for a special MDA Advocacy Institute spotlight on the Credit for Caring Act & Alleviating Barriers for Caregivers Act. Hear from Capitol Hill + AARP & learn how to take action.
Muscular Dystrophy Association
@MDAorg
Jan 31
1/3 🚨 BREAKING: The U.S. Senate just passed legislation advancing major priorities for the neuromuscular disease community—including strong NIH & federal medical research funding.
Muscular Dystrophy Association
@MDAorg
Jan 26
What’s on the public policy horizon for 2026? 🏛️ Join us for the #MDA #Advocacy Institute on Jan. 29 at 7 PM ET to learn about our 2026 advocacy agenda & how the #neuromuscular community can add their voices. Register: mdausa.webex.com/weblink/regist…