Raiden Science Foundation (@RaidenScience) / X

Raiden Science Foundation

255 posts

Raiden Science Foundation

@RaidenScience

Give kids suffering from UBA5 disease a chance to live a healthy life.

Joined February 2022

Pinned
Raiden Science Foundation
@RaidenScience
Feb 11, 2025
🎧 Tune in to our podcast episode sharing Raiden's journey. Produced by @UMassChan, Real Diseases, Real Stories highlights families changing the world of rare diseases. Listen to our episode & more here: umassmed.edu/rarediseasesre… #RareDiseases #UBA5 #RareDiseasesRealStories
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Raiden Science Foundation
@RaidenScience
Mar 14
Thank you @KGWNews for sharing our story.
A Beaverton family is seeking a cure for 6-year-old son’s rare genetic disorder. Here's how you can...
From kgw.com
Raiden Science Foundation
@RaidenScience
Feb 28
Today is Rare Disease Day 🦓 Thank you to @OHSUDoernbecher for inviting us to share Raiden’s story and the work we’re driving through the Raiden Science Foundation for UBA5 disorder as part of the 2026 Rare Disease Highlights Day yesterday. #RareDiseaseDay
Raiden Science Foundation
@RaidenScience
Feb 26
Happy 6th Birthday to our little inspiration! 🎉🎂 If you’d like to help make his day extra special, please take a moment to sign his birthday card. He’ll love seeing the messages and and we’ll read every single one to him. kudoboard.com/boards/mLVaVoTC
Raiden Science Foundation
@RaidenScience
Feb 11
🚨Got 2 minutes? Vote for us in this year's Project For Awesome. Voting is open until 2/18. Community votes decide which charities receive the P4A grant. 👉projectforawesome.com/videos/project… #RareDisease #UBA5 #Awareness #Research #P4A2026 #community

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