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I started a blog...for what it’s worth...
Ellie Wildbore
6,629 posts
Ellie Wildbore
@EllieWildbore
Service User - C-PTSD, Anorexia🌟Mental Health Lived Experience Practitioner working in Research @shscft 🌟Burns Survivor 🌟Views my own🌟 Roller skate mad 🛼
Sheffield
Joined November 2012
- After exactly a year, I am officially no longer living in mental health units & from tonight I will be living in my own home with support from a team of personal assistants. It’s been a hell of a bumpy journey but I’m proud of the changes in the last 6 weeks. Onwards and upwards!
- Sitting here in a NHS mental health strategy meeting after having heard on Twitter of another person dying after having asked for help - they tweeted about it and now they’re dead. It’s all so incongruent. How do we get those tweets and experiences into these rooms?
- Seems weird that this should be good news but anyone familiar with the BPD label will know it is….just had a second consultation with my psychiatrist and my BPD diagnosis is being removed and replaced with C-PTSD. I feel seen and heard.
- I’M GOING HOME!!!After 6 months in units, a lot of stress for over a year-it looks like I will be returning to my house with live in carers in 3 weeks time. It won’t be straight forward I’m sure BUT IM GOING HOME!!!! 🏡💖 Home is such a luxury-I will never take it for granted!
- As a service user - our voices are automatically muted against those of professionals and I have felt particularly silenced this year. So I can’t begin to explain how validating and a relief it is to hear a professional say “I believe you, and in the future this needs to change”
- Major crisis. Rang duty team. Someone I hadn’t spoken to. 1st sentence she insinuated talking to me was important. Delved into my notes &consulted my carefully made crisis plan. Spoke to me& relevant others multiple times in the day. I’ve made it through the day. Outstanding. 🙌
- Emotive meeting today presenting our mandate with @NHSEngland around the “PD diagnosis” and our call for how things HAVE to change, particularly in tier 4 “specialist” services. I hope it has landed well and things can start to change for the better and stop retraumatising people
- Whistleblowing as a service user is one of the horriblest things to have to do. It rips you apart, makes you think you’re a terrible person, makes you doubt what is right and wrong, it puts you and others in such a vulnerable position. I’m struggling this week.
- Replying to @BethMatthewszI was sent to a hospital in another city for a year and it changed my life. That city is still now a safe place and a place of positive change for me. Don’t give up hope. 🥰💖🥰
- 1/2 I haven’t been to the dentist for over 4 years (PTSD - not fear of dentist). Half my tooth fell out. Got referred to community and special care dentistry and I have been so impressed. So trauma informed. So expert at managing people who can’t be managed at normal dentists
- Today I spent an hour wandering around town by myself AND managed a chai latte alone. Both are a v big deal. I haven’t been able to be safely out alone like this since October. To be able to manage it physically and mentally AND manage snack, is an absolute gift. #NeverGiveUp
- Can we just take a moment to appreciate my amazing #NHS GP who has stoically stood beside, known&supported me over the last 8 yrs. Admitted MH was not his forte at first but made it his business to learn. Knows exactly the right things to say to empower me #patientcentredcare
