Before I type the good news, I just had to post this series of pictures. No, she's not eating. She refuses to take anything by mouth still, and we are STILL (almost a year later) on the waiting list for feeding therapy. But lately I have been giving her a bowl of whatever we eat to play with. She makes a giant mess, but more importantly she touches it! It gets on her fingers, and as you can see in the pictures, her fingers get in her mouth. She gets little tastes and looks at me and smiles. She's such a power monger. LOL She has to tell me "I know I tasted it, but I am NOT going to eat for you". Hehe It's good for her to play with it anyway, and it keeps her occupied while we eat!
So on to the good doctor's appointment for once ...
Emily has had renal ultrasounds every 6 months for years now. Then three years ago or so we had to start catherizing her every 8 hours. Then it got moved to every 6 hours. Then finally it got moved to every 4 hours. Since that works at preventing UTI's, it's not a horrible thing. She got the Mitrofanoff last September (I can't believe it's been almost a year already!) which was a HUGE improvement. So catheterizing isn't a big deal, but I was going to be really sad if we were doing this all and her hydronephrosis wasn't getting any better. The last two ultrasounds, it stayed unchanged.
She had her ultrasound the end of July, and her urology follow-up the other day. The news? Great! Her right kidney is COMPLETELY normal! It is not enlarged at all anymore! Her left kidney? Not as good. Improved slightly, but still enlarged. So now she has unilateral hydronephrosis instead of bilateral. I'll take it! :) We are to continue catheterizing every 4 hours through the Mitrofanoff, and call with any infections or problems.
Barring infections or anything else, we are cleared for a YEAR! Whaaaaat? Awesome news! :)
