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SEDSConnective
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SEDSConnective
@SEDSConnective
Charity - Hypermobility EDS/ GJH MCAS POTS Allergies GI NEURODIVERGENCE AuDHD Dyspraxia TS Dyslexia + Chair @JGJanegreenMBE / Patrons Dr Eccles, Dr Spiritos
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Joined January 2019
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  • Pinned
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    SEDSConnective
    @SEDSConnective
    May 7, 2025
    Strange or utterly makes sense! Did you know some of the connections with hypermobility and neurodivergence ? #EDS #HSD #neurodivergent
    Our umbrella of connective tissues and connections. Multicoloured with text underneath and SEDSConnective new logo
    5.6K
  • user avatar
    SEDSConnective
    @SEDSConnective
    Apr 6, 2022
    Did you know most of our members had a fibromyalgia diagnosis before receiving their hypermobile Ehlers-Danlos #hEDS or hypermobility spectrum disorder #HSD diagnosis? Did this happen to you too?
  • user avatar
    SEDSConnective
    @SEDSConnective
    Mar 2, 2023
    Hypermobility can be more than bendy joints, therefore viewing a person’s symptoms holistically. understanding physical symptoms could be linked + Autism/ADHD Connections to symptoms are overlooked/not understood leading to feelings of being disbelieved by medical practitioners
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    20K
  • user avatar
    SEDSConnective
    @SEDSConnective
    May 3, 2022
    Here is a simple diagram of some of the common symptoms/conditions and how they might be felt by you or seen by others. If you have some, you might want to look further into the criteria for a diagnosis and talk to us #EDSawareness #HSDawareness #SymptomaticHypermobility #JHS
    description of common symptoms conditions often found in hypermobile EDS HSD JHS.  and overall Pain.
  • user avatar
    SEDSConnective
    @SEDSConnective
    May 29, 2023
    NEURODIVERGENT people (id below) are more than double likely to be symptomatic hypermobile, with increased pain and dizziness What is your experience of this? Comment below. #Autism #ADHD #Dyspraxia #TS + bsms.ac.uk/about/news/202…
    Busy inforgraphic depicting pain dizziness research results.
    17K
  • user avatar
    SEDSConnective
    @SEDSConnective
    Sep 11, 2024
    A study looking at possible blood bio markers for hEDS HSD plus possible OA RA PsA and this issues of current diagnostic assessment researched using data from DICE / Hedge funded by @TheEDSociety onlinelibrary.wiley.com/doi/10.1002/aj…? #hypermobility
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    onlinelibrary.wiley.com
    Bridging the Diagnostic Gap for Hypermobile Ehlers‐Danlos Syndrome and Hypermobility Spectrum...
    Diagnosing hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HSD), common overlapping multisystemic conditions featuring symptomatic joint hypermobility, is challenging...
    16K
  • user avatar
    SEDSConnective
    @SEDSConnective
    Jan 2, 2025
    Did you know 90% of people with hypermobility Ehlers-Danlos syndromes #hEDS or hypermobility Spectrum Disorders #HSD have 9 common physical Gastrointestinal (GI) issues ? (but don't forget the impact on mental health either) especially when disbelieved #bodyBrain
    Infographic by SEDSConnective depicting gastroenterology symptoms with hEDS hsd
    8.2K
  • user avatar
    SEDSConnective
    @SEDSConnective
    Apr 13, 2024
    Some common symptoms/conditions we have & how they might be felt by you or be seen by others. We are the neurodivergent and symptomatic hypermobility user led charity. Please share our work Follow us at SEDSConnective.org and our Page facebook.com/SEDSConnective
    Body outline with lots of text. Some common conditions/symptoms of symptomatic hypermobility EDS HSD . Often seen as . SEDSConnective and infinity logos
    20K
  • user avatar
    SEDSConnective
    @SEDSConnective
    Jul 27, 2023
    'If you can't connect the issues think connective tissues' - unknown author We have designed the neurodivergent connective tissue umbrella. This might still evolve. All rights SEDSConnective. #ConnectingTheDots ....... #SymptomaticHypermobility #EDS #HSD #Neurodivergence
    SEDSConnective Infographic
    11K
  • user avatar
    SEDSConnective
    @SEDSConnective
    Jul 9, 2024
    It might sound strange but we just heard about this. Is anyone using nicotine to help symptoms of long Covid?
    14K
  • user avatar
    SEDSConnective
    @SEDSConnective
    Nov 30, 2023
    Do any neurodivergent folk have issues with their necks and extreme chronic fatigue symptoms or a diagnosis ? #hEDS #HSD #EDS
    7.6K
  • user avatar
    SEDSConnective
    @SEDSConnective
    Aug 8, 2024
    'If you can't connect the issues think connective tissues' - unknown author We have designed the neurodivergent connective tissue umbrella. This might still evolve. All rights SEDSConnective. #Connective #Hypermobility #EDS #HSD #Neurodivergence
    complex infographic of connective hypermobility neurodivergence umbrella .  SEDSconnective logo and Key with lots of text of conditions and symptoms AUTISM ADHD Dyspraxia EDS  HSD Dysautonomia
    5.5K
  • user avatar
    SEDSConnective
    @SEDSConnective
    Feb 23, 2024
    Did you know nearly all our adult members have a previous diagnosis of #fibromyalgia? Many of their children are exhausted or have burn out Do you have this? Does it answer your many varied unexplained symptoms, flares & conditions? #SymptomaticHypermobility #Neurodivergence
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    4.5K
  • user avatar
    SEDSConnective
    @SEDSConnective
    Oct 3, 2024
    90% of people hEDS HSD suffer from these 9 common gastrointestinal symptoms Read the gastroenterology paper here sedsconnective.org/copy-of-resear… or at practicalGastro Journal
    infographic of text describing 9 common symptoms images depicting them sedsconnective’s logo
    4.9K
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